Wow. I can’t believe that we are already in October and so far this year I have only written 10 posts! So much for my plan to write 50 posts this year. Of course, looking back at my plans made last December, I can see that I have “failed” in nearly every single one of them. And yet, from where I’m standing right now, this does not feel like a failure to me as much as a change of perspective.
At the end of last year I still believed that the DWP were going to expect me to work towards getting back to work. And there was a big part of me that knew I would never be able to do that in the more typical way. I was too sick. So I was trying to find a way to make it possible. I was trying to figure out how to make this blog profitable, once and for all.
But the truth is, I am sick. I simply do not have the energy or health to invest in creating the kind of content and promotion and brand/client networking that is required to earn consistent money from self-employment. The only work I have done for anyone other than myself this year has been for the church, and that has been limited to creating one post for the Facebook page per week, promoting the service. And even that has felt impossible some weeks.
No, working isn’t something I am capable of right now. And thankfully the DWP agreed with me on that one (although how they then went on to refuse me disability benefits, I don’t know – surely, if you’re too sick to work, you’re classed as disabled, no?) Anyway, I digress.
This year has been a hard one. I have been more ill than I have ever been (well, aside from my pregnancy from hell, but at least that had an end point!) We’ve been in a major battle with the DWP, we’ve moved home because I could no longer cope with the stairs in our house, and I have spent a large part of the year completely debilitated by pain, nausea, migraines, and dysautonomia. And as such, I’ve had an awful lot of time where all I could do was lay in a darkened room, thinking about life, and trying to figure out who I am when I am not all the things I always thought I was. Including a blogger.
You see, over the years, as I have begun to use my media experience to work with clients, I started to forget that it’s perfectly okay to just blog for the sheer joy of blogging. I forgot that a post didn’t have to take 3 hours, when you calculated the time taken to write, research links, edit for SEO purposes, find a decent stock image, create promotional images for various social media platforms, and then share on said platforms. That’s what you do for a client, or for a business site. It’s not what you do for a hobby blog. Or, at least, it can be but it doesn’t have to be.
A couple of weeks ago I almost gave up blogging. Which is sheer and utter madness, as I’ve been blogging since 2006. It’s as much a part of me as anything else. The problem was, I’d forgotten how to blog just for me. I’d forgotten when it was like to write whatever was on my mind, regardless of whether it had any value to anyone else. I’ve never been very good at writing in a diary or journal, it makes my hands hurt for one thing as I can’t form the letters as quickly as I can type them, and I grip the pen too hard and it messes with my hypermobile joints. But more than that, I actually love the creativity of sitting down and crafting a post that, whilst not necessarily aimed at others could still be read by them. It helps me form a structure to my random thoughts, and that, in turn, helps me figure out things I might never have noticed if I didn’t blog.
Plus, blogging means that I have a permanent collection of thoughts and feelings to look back on. I might misplace a journal once full, but I can’t misplace a blog. My first blog is still lurking away on the good old internet. I looked back at it the other day. And my second one. And it was so wonderful to read my little rambling thoughts. To see how much has changed (and also, how much hasn’t!)
And suddenly I realised that this is what I wanted my blog to be. I wanted it to be a collection of memories. A place where I could just come and share whatever was on my mind. I didn’t want to worry about whether it would make sense to anyone, or whether I needed to include background information for something to make sense. I just wanted to write and share. And so that’s what I’ve decided to do.
I spent most of last week trying to come up with a new tagline which really encompassed this new theme for the blog. And then suddenly, out of the blue, it came to me. Life, as it happens… Because it’s nothing more than that. It’s life, as it happens. It’s not worrying about the future. It’s not worrying about where I fit in. It’s simply life. And life is a flow of new beginnings. Every day is a new beginning. And I want to focus on that. Taking each day as it comes. And writing about whatever happens to take my fancy.
But even though I’d come up with this idea, I still needed one last little push to actually do it. And that came in the form of a wonderful group of people who are all taking part in Get Your Happy Back (GYHB). I won’t write about GYHB in this post, as I want to end this soon. But just know that it is an amazing community that once you join becomes like your family for life. They meet 4 times per year to work on, as it says on the tin, getting your happy back. Because we all get beaten down by life, don’t we? And we all need the opportunity to come together and focus on ourselves regularly, right?
I know I do. In fact, I know I need to work on this a LOT. During the group call on Saturday, my microphone wouldn’t work, so I couldn’t join in to begin with. We all had a laugh about it, but it was very poignant for me. I have issues with expressing myself. You wouldn’t think that, would you, really? I mean, I’m a linguist and a writer – words are what I do. But as my dear friend, Rachel (who is an amazing therapist, by the way), mentioned to me today, there is a big difference between my ability to analyse what I think is going on and what I think people want to hear, and actually expressing what I need to express.
I’m so terrified of what lies beneath all the different personas, that I don’t even really know who I am anymore. And that’s scary. Because if I dig deep and I find out I’m not who I have portrayed myself to be for all these years, will people like the real me? Will I even like the real me? Scary stuff, huh?
Which is why she has challenged me to sit in front of a mirror and tell my story. From the very beginning (birth). In chapters. Because God knows I have a lot of layers to work through! And, to be quite honest with you, this blog post is a little bit of a delaying tactic, as I’m putting off getting started. But that means that this is really important, and so I’m going to be brave and I’m going to do it. I’ve got the house to myself until 5, when I have to go to an appointment to remove my Mirena (more on this at a later date – it’s a big, scary, but empowering change!)
So, changes are afoot. I am going to try to stop worrying about who I am and actually see if I can simply find her underneath all of these layers. I’m going to try and tell myself my story. And I’m going to use this blog to document what I call my “Sacred Healing Journey” over on instagram. Because this is life, as it happens…
I wanted to take a few moments today to reflect on the changes that have been happening in my life over the past few years. I don’t mean the external changes, although there have been plenty of those! I mean the internal changes that have helped me to look at my life from a whole new perspective, leading me to redefine my own sense of self-worth.
It feels almost impossible to know where to begin with this, because the way I view my life has changed in so many ways over the past few years. But I think the most logical place to start is in my teen years, when I first began to develop a warped sense of self-worth
Self-Worth from a High-Achiever’s Perspective
I’ve spent the vast majority of my life believing that my value came from the things I did, rather than simply who I am. As a naturally high-achiever at school, it seemed almost inevitable that this would happen. I got consistently good grades (often the highest in the class), and then I went on to study at one of the UK’s top universities. By the time I graduated, aged 22, my entire life had been about academic achievement. And yet, despite this, I never felt “good enough”.
It doesn’t make much sense, does it? I achieved so much as a teenager and in my early twenties, academically at least. You’d think that this would provide a solid foundation for confidence in my skills and abilities, but in reality the exact opposite was my experience.
I actually really struggled with self-worth a lot whilst at university, and when my dad asked me if I was finally proud of myself on my graduation day I honestly said that I wasn’t. I felt like I had completely bluffed my way through, and was a fraud.
And the thought of moving into employment terrified me, because I couldn’t ever see myself feeling confident enough to cope in the workplace. You see, for me, my self-worth had become so intrinsically linked with my achievements, I felt huge amounts of anxiety and fear over maintaining that high level of accomplishment. Anything less than “the best” felt like failure to me.
the ongoing impact of low self-worth
As a result, I did everything to avoid going into roles that might really challenge me. Don’t get me wrong, I loved my time working in childcare, retail, and student support. I’m a sociable person, and working in roles that involved meeting lots of people was lovely. But I never stayed anywhere long enough to advance up the career ladder. It didn’t matter that my employers could see my potential, giving me greater responsibility than my role actually required, I couldn’t see my worth.
And for most of my 20s I felt like I was just biding my time until I got married and had kids. The one thing I had always been sure about in my life was that I adored children and couldn’t wait to be a mother. I convinced myself that I wasn’t career driven or ambitious, I was just holding down a job until my real role in life would begin. So I was overjoyed when I fell pregnant in 2011, just a few months after our wedding. But my joy was short-lived.
when life throws you a curveball, it’s easy to doubt yourself
As you may know, I suffered from Hyperemesis Gravidarum during my pregnancy. It was, quite honestly, sheer hell. I knew, without a doubt, that I couldn’t possibly face another pregnancy, because my first one almost broke me. But so did the decision never to have another child. I have never been so angry with God than I was during that time.
I remember crying through angry tears, asking why I had been made so maternally driven if I were only ever to be allowed one child. The one thing I had always felt so sure about, that I would devote years of my life to raising a young family, was suddenly snatched from me. And it broke my heart. I absolutely adored being a mother, it was everything I had ever dreamed of. But in my grief and confusion, my lack of self-worth started to seep into this area of my life too.
Any parent will tell you that having a baby is exhausting beyond belief. It feels relentless and scary, to be solely responsible for the welfare of this tiny being. And that’s before you even begin to look at other things that can make it even harder. We all have things we struggle with when we become parents. For me it was the combination of trying to recover from the trauma of my pregnancy whilst: caring for a baby who never slept; trying to deal with terrible issues with oversupply (which felt like my body was letting me down yet again); and supporting a husband who was beginning to suffer from depression. So, it’s not all that surprising that my thought process turned to beating myself up.
the destructive power of doubting yourself
I knew and trusted myself enough to know that I needed help to avoid spiralling out of control into a pit of despair, so I asked my doctor at my 6 week post-natal check for a referral for mental health support. I ended up having 7 months of CBT, and honestly I credit that with keeping my head above the water. But even with that, I still lacked the self-worth to follow my instincts and allow myself time to heal and process what had happened.
My inner chatter began to say things like, “why would you even believe you deserve to have more children when you’re already struggling with one?” and “what gives you the right to stay home and enjoy being with your child, when your husband is struggling so much at work?” I began to question everything, and whilst I look back on that first year with happy memories of sitting for hours just cherishing being home with my boy, I can see how I ended up taking the next steps that I did. Because I didn’t believe I deserved to enjoy being a stay-at-home-mum, nor did I feel like I was doing enough in my life. I felt like I needed to do more.
In a series of what I can now see were misguided, if well-intentioned, choices, I found myself pushed beyond my limit and close to a complete breakdown by the end of 2014. I returned to work when my son was just 15 months old, far sooner than I ever thought I would, and whilst I enjoyed the work immensely I also missed being with him more than I can say. At one point I ended up working two separate part-time jobs, and when one offered full-time hours I took it as it seemed easier than balancing two roles. But it was a role in which I felt incredibly isolated and which, due to the nature of the work tapping into my own personal trauma, almost broke me.
To any outside observer, 2014 should have been a high point in my career. My book was published and hit the top 10 for books in its genre on Amazon. I was interviewed live on national television. And I was working in a role that enabled me to support women all around the country. But I was falling apart inside in ways I had never, ever experienced before. And it was all because I hadn’t trusted myself enough to follow my instincts when they had repeatedly said, “this isn’t what you’re meant to be doing”.
sometimes the best lessons in life are the hardest to learn (because we resist them so much)
Near the end of 2014 I wrote a post called Warrior, because I felt like fighting was what I needed to do. But a few weeks later, in a moment of sheer desperation, I prayed to God in a way I’d never done before. I said, “I’ve tried everything, and I don’t know what I need to do any more. Please, you have to show me the way. It’s your turn now!” And I truly meant it.
I had spent so much time trying to figure out what I was supposed to do with my life, to give my life meaning, if I wasn’t meant to spend this part of my life raising babies. And I had found a purpose, no doubt about that. I had thrown myself wholeheartedly into campaigning for better awareness and care of Hyperemesis Gravidarum, so that one day no woman would have to make the same heart-wrenching choice never to have another baby as I had. But that wasn’t my purpose. That wasn’t what I was here for, and I was finally beginning to accept that.
But I was still very much caught up in the movement in a way that was deeply damaging for me, as well as for those I worked with. And I couldn’t see a way out. But, do you know what? Within moments of passing control over to God, I received the most overwhelming feeling of peace. It just washed right over me, and I heard the word, “Surrender“. And I knew that was what I was being asked to do. I wasn’t being asked to fight for (or against) anything, I simply had to surrender into it. And boy, did I surrender!
answered prayers often take us to places we could never have imagined
Within weeks of my prayer, I had been made redundant; been turned down at three separate interviews for being “over qualified”; and battled with a letting agency after our house move fell through unexpectedly. And yet, I felt nothing but quiet assurance that all would be well. I even began to think about trying to go it alone, finally finding the courage to look at my blog as a business opportunity, a chance to do what I was best at (communicate), rather than simply a hobby.
But in the end, I still didn’t trust myself enough to do that. I still felt as if that was something other people got to do, and it was silly of me to even contemplate the idea. Which is crazy, because it was around this time that one of my blog posts was chosen as one of the Blogger Keynotes at a blogging conference, and I got to read it in front of a room full of bloggers in June 2015. But still, I felt as if I wasn’t “good enough”.
So I eventually ended up in a part-time role, which I loved, but which was physically exhausting. My body had never really recovered from my pregnancy, all the symptoms connected to my EDS had increased, and my fatigue was at an all time high. I began to spend 3 days a week working, and the other 4 feeling like I had the flu. I could barely move, and began to get sick regularly on top. At the time I was gutted. I had thought I had finally said goodbye to the stress that had taken such a toll on my body.
But it was like my body was doing everything it could to make it impossible for me to continue ignoring the fact that I still wasn’t listening to my intuition. Every time I tried to find a purpose, things seemed to get immeasurably harder. I spent most of 2016 seeing multiple specialists to try and figure out what was wrong with me, and in the end I was given a diagnosis of Fibromyalgia.
life will keep sending you the same lesson until you get it
Even with this diagnosis, I still refused to stop and look at what I really needed to learn – self-worth. I left employment after 6 months on sick leave, but set myself up as a freelance VA and web support. I wouldn’t have dared dream of doing that until my sister-in-law asked me to do some work for her and suggested my skill-set was actually really valuable to other businesses. But with enough encouragement from her, along with two coaches I was lucky enough to work with (Pippa from Story of Mum, and Michelle Reeves), I took the plunge and set up Shortman Media.
My aim for the business was to build it up enough so that I could train Tim in the work I did, so that he could start working from home too. We knew his days in regular employment were numbered, and really wanted to avoid the UK Benefits System, which we knew was notoriously bad for supporting people like us. And for a while, it seemed as if this would work. During 2017 I managed to work with 6 different clients, and gained two amazing testimonials that boosted my confidence a bit.
But it wasn’t to last. By the end of 2017 I was working the absolute minimum hours (less than 10 per month), and even then I was struggling. And yet, despite knowing my health was in a rapid decline, I still had the most ridiculously ambitious plans for 2018.
when you “get it”, you really get it
I was still trying to “fix” my life, to find some purpose within the madness, so I didn’t have to face the fact that I needed help. So my body continued to send me messages I could not possibly ignore. I began suffering with migraines that lasted for 2 weeks every single month. I caught every virus going. I became practically housebound, barely leaving my house for the first quarter of 2018. I was literally reliant on others for pretty much everything.
And it was hard. Oh, boy, was it hard. I fought with feelings of guilt, and failure, as it just seemed to be one battle after another. The last 6 months of my life have felt like the darkest pit. And yet, once again, as I began to hit rock bottom I found my faith growing. I clung on to the hope that we would, one day, find our way out of this mess. And I began to realise that the only thing I could really do was focus on looking after myself.
I realised I couldn’t change what was happening to us externally, but I could change how I felt about it internally. I began trying to do things that eased my soul, and chose to trust that the Universe had my back. But it was hard. For instance, there were 3 weeks in which we were unable to bid on any council properties. This was then followed by several weeks when the only option were flats, which I knew without a doubt would be a terrible move for us.
There was one week when I really began to doubt myself and wonder if we should bid on a flat, just to get out of the house that had become almost prison-like to me. But I held faith, and lo and behold the very next week our dream bungalow became available. And even though it felt too risky to even dream we might get it, I just knew it was ours and felt like I was simply waiting for confirmation of what I already knew. And a week later, it really was ours!
letting go of the ego to find a true sense of self-worth
Of course, moving when you’re as ill as we are is far from easy. I had to swallow my pride over and over again, asking publicly for help with everything from decorating to doing tip runs. But do you know what I learned from this? I learned that people were more than happy to help, because they valued me for who I am, rather than what I could do. And it was a real revelation!
The more I asked, the more I received, and I began to see how truly blessed I am. In the moments when I felt like the biggest failure, I reached out for help instead of trying to hide my shame, and received so much support it was incredible. And it reminded me that, all along, I’ve been supported, I just didn’t want to believe it. Because I didn’t feel worthy. I felt like I hadn’t earned it.
But all that was changing. When I felt like I truly had nothing left to lose, I realised I had gained so much more than I could ever have imagined. And slowly, but surely, I began to redefine self-worth. I began to truly understand what it meant to honour yourself as worthy, just as you are. To “stop playing small” and fully embrace the beauty of who you are. I began to accept what I had written a few years ago, about us all being made to shine. And I began to trust myself again (or maybe, even, for the first time ever!)
when you trust yourself, you begin to find your way
This all brings me to the past few weeks, in which a huge amount of inner healing work has taken place. It all started with Rebecca Campbell’s new Work Your Light Oracle Deck, which I kept seeing on instagram.
I have several oracle decks already, and used to use them quite a lot. But in recent years I just haven’t felt connected to them at all. So it surprised me to be so attracted to this new deck, especially as the artwork was so different to what I would usually be drawn towards. After seeing it multiple times, and feeling a gut reaction to it every single time, I decided to trust my instinct and order it. And, wow, was that the best decision I have made in a very long time!
The deck itself is so incredibly beautiful, and the emphasis on the idea that You Are The Oracle really spoke to me. You can read about my first experience with the deck here, which in and of itself is incredible. I’d never shared anything quite so “New Age-y” so publicly before, and it felt really scary to open up that part of my life and express how much it means to me, especially as someone who also describes herself as a Progressive Christian.
Don’t get me wrong, I’ve touched on this in the past, but I’ve never authentically shared how it fits into my own personal life, nor how important it is to me. And that felt like a terrifying thing to do. But it also felt so right. As I wrote in my instagram post, “I’m finding the courage to share all the aspects of my faith and spirituality. Because I do connect with both “New Age Spirituality” and Progressive Christianity. I truly believe they complement each other and do not have to be an “either, or” option when it comes to faith. This is my path, and I don’t want to hide it any more.”
finding the worth in your own, unique story
Thankfully, several people liked and commented on my post, giving me the added reassurance that it was safe to share my story in this way. And it opened up so many doors for me. Because, for the first time ever, I began to see the worth in my story and the power in sharing it openly.
I’ve been blogging since 2006, and right from the beginning I wanted to write about faith and spirituality and how beautiful it can be when it is truly inclusive. But as a 22 year old, I felt like I had no right to be writing about such things – what did I know about life?
So I began writing about things that seemed “blog-worthy”, based on the types of topics other bloggers were writing about. Things like homemaking, crafts, and parenting. But the truth is, that wasn’t what I needed to write about. I needed to write about faith. And I needed to write about it in the context of life itself.
By that, I mean, I didn’t need to have it all figured out, I simply needed to write authentically as life happened. Because there is power in being open and raw and vulnerable, especially in a world that is so hell-bent on aiming for perfection. My beauty lies in the unfiltered parts of my life. And my worth is based on who I am, not who the world wants me to be.
changing “only” to “Amazing”
And so, I began to simply write what was on my mind, rather than worrying about whether it was share-worthy. And I began to trust that it would find those who needed to read it. Because a few weeks ago, in what I can only describe as an inspired moment of clarity, I suddenly realised I had been looking at my blogging journey all wrong.
For many years, I’ve felt like a failure for blogging for so many years and still only having a fraction of the reach that other bloggers have. I felt bad that I get “only” 2,000 visits to my blog per month, that “only” 147 people follow me on Facebook, and that “only” 660 people follow me on instagram. But in that moment of clarity, I changed my “only” to “amazing”.
I realised that it is truly amazing that my blog is viewed 2,000 times per month, despite me doing pretty much no social media promotion whatsoever. And it is beyond amazing that people not only follow me on Facebook and instagram, but they also encourage and connect with me whenever I post, despite my posts being irregular and likely to be lost in such a fast-paced environment.
just share your story, that’s all that matters
I couldn’t possibly reach as many as I do people without my blog or social media. So it is a true blessing to be able to share my story in this way. And I’m beginning to see the true value in sharing it, no matter how many people read it.
Funnily enough, the Universe was determined to help me remember this, as I suddenly came across a video series by Gabby Bernstein, in which she encourages you to simply get out there and share your story. In her first video she even mentions someone who arranged a public talk and only one person turned up. And yet, after her talk that one person thanked her for such an incredible experience. If we simply share our story, the rest falls into place.
And so that’s what I’m going to do. I’m going to share my story. I’m not going to worry about how long this post is, or whether it’s “of value” to anyone else. It’s of huge value to me, and reminds me that I’ve been sharing my story all along. It’s just, now I’m doing so with intention. Now I’m sharing it because I understand that it has value simply because it is true and authentic. And because of that, it is also healing.
How do you know your worth? What is it, about yourself, that you feel makes you worthy? Is it the things you say or do? Maybe it’s your achievements and successes? What about your career? Or your relationships to others? What do you hold on to tightly, whenever you feel doubt begin to creep in?
For me, it is my goals and achievements. It is the things that I have done which I feel give me worth. Which is a problem for me right now, because at the moment I am too sick to do anything. I am barely getting by with the day-to-day tasks, doing the odd bit of work here and there and just about surviving, but certainly not achieving any real goals. And that is terrifying, because without those who am I?
a change in perception
You may remember that I shared 18 things I wanted to achieve this year recently. When I shared them with a close friend, I was reminded that these are ambitious goals for someone much healthier than I am right now. And it made me realise that I am struggling so hard with redefining my worth now that I am so sick…
And it’s not just the achievements that bother me, it’s the interactions with others and my perceived role in relationships that bothers me too. How can I be a good mother, daughter, sister, and friend if I’m too sick to do anything beyond the odd message here and there and a call out for help when I need it. What am I bringing to those relationships right now? Where is my worth?
Have you ever felt like that? Have you ever felt completely worthless, like you simply cannot do or be enough, just as you are? Have you ever carried feelings of guilt and fear over where you are and who you are becoming? Do you recognise what I’m trying to say?
If so, I hope that you’ll find the video below helpful. It is a poem I wrote on one of my darkest days recently, which also turned out to be one of the biggest turning points of my life so far. It starts with a feeling of helplessness, and ends with a message of love, which is exactly the journey I went on whilst writing it.
How did the poem make you feel? Can you relate to it? Did your mind fight the message at the end, not wanting you to believe how worthy you truly are just as you are? I’ve certainly been there and experienced that, which is why I love the powerful healing that I experience when I create something like this.
the healing power of creativity
For me, letting the creative juices flow enables me to get out of my own head and let the wisdom of the Universe speak through me. It inspires me, gives me hope, and reminds me that there is so much worth in the most simple of actions. By taking a moment to be quiet, allowing myself to be inspired, and then letting the poem work its way out into the world, I facilitated a shift in my whole perception.
Of course, as soon as I had done it I began to doubt myself again. I worried that the poem would make no sense to anyone else. Not that it would matter that much if it only made sense to me… except my experience whilst writing has always been that this is where my true worth lies, this is what I can bring to the world. So I wanted it to mean something to others.
So I swallowed my fears and shared it with a few close friends. And the response was more than I could ever have hoped for. Seeing others respond to my words not only increased my confidence in my writing, but also reminded me that we all hold these fears within us. I’m not alone in feeling this way, and so sharing my heart with you all is just as valuable as anything else.
I wanted to share it with you straight away, of course. But life had different plans, and I’ve been too sick to do it until now. But that’s okay because I’m learning patience as well as everything else. My worth is not in producing content constantly, rather it is in allowing an idea to flow and grow until it is ready to be shared, no matter how long that takes. There truly is worth in every step… even when that step might be resting in bed!
You’ve probably noticed it’s been rather quiet here at The Patch lately, and there’s a reason for that. I’ve been really struggling health-wise, and in an attempt to keep going through everything that has been going on, I decided to focus on other areas such as Shortman Media and Spirit Kid Network. However I really, really missed writing here and so I am finally making the time and space to come back to this wonderful little blog of mine.
Last week we headed down to Glastonbury (my favourite place on earth) for an impromptu holiday, and for the first time in so very long, I knew what I needed to let go of in order to begin creating the life I want. The things I want have changed so much over the past few years, and it all started when I went from wanting to have a big family to trying to force my grief over my pregnancy (and loss of more children) into something positive. I poured all I had out into campaigning for others and trying to make the most of a situation I found so incredibly challenging, and in doing so I failed to recognise what I needed most – to embrace all the parts of who I am.
Years ago I wrote constantly. I’d scribble things on napkins in cafes as inspiration hit, I’d spend hours reading and writing about the things I found most exciting or intriguing, and my whole life revolved around communicating (I was a language student, after all). And for a while there I completely lost that side of myself. I got caught up in trying to “be a good blogger”, following advice from others rather than simply writing from the heart. And I did this because I felt I had lost who I was, and so I couldn’t identify myself without turning to other people’s interpretations of what it meant to write a blog.
And in my life as a whole the same thing happened, as I tried to figure out what it meant to be a mother, a successful employee (and then freelancer), a wife, a friend… I didn’t allow myself to be sick, even when I was sick, because I didn’t think that was what I was meant to be. I tried to keep up with people far healthier than I am, hoping to somehow redeem myself and my worth through being something other than who I am. And I never allowed myself to feel the grief and the pain and the anger over where I found myself, because I didn’t want to accept them as a part of who I am.
And all of that led to an intense loss of self, a situation where I forgot that as humans we are beautiful, multi-faceted beings, who sometimes fall so very low and need to stay in that darkness for a while before climbing back out into the light. By trying to lighten my situation constantly, I ignored a whole part of my soul, and ended up splitting myself in so many different directions I had no idea where my centre lay anymore. And the more I did this, the harder I fought to keep up the charade.
My time in Glastonbury changed that, however. I had some wonderful Soul Healing at the Goddess House, where a wonderful lady called Mandi Thorne explained how she could feel my resistance to let go. I have been clinging on to a false sense of control for so long that I am terrified of letting go and allowing all the emotions to bubble up to the surface. They scare me. And that needs to change.
So I’m taking tiny steps towards embracing the whole of who I am, rather than trying to be who I think I should be. And a large part of this involves closing down my other site (Spirit Kid Network) and bringing the spiritual resources I was trying to create over there to The Family Patch. When I set up SKN I did so because I didn’t think the resources fit here. And that was a mistake, because they are a huge part of who I am.
You only have to look at my posts over the past year to see I have written far more about my faith here at The Family Patch than I ever did over on my spiritual site. And that is because I pigeon-holed that site too, making myself believe that if it was about me and not a resource for kids it didn’t really belong there. I ended up losing my voice completely by splitting the parts of who I am so strictly.
So over the next couple of weeks I’m going to be rebranding The Family Patch to reflect this new integration of all that I am. No longer will I worry about whether it’s a craft blog or a health blog or a spiritual blog or whatever else I think it should be in order to fit in. It is a beautiful, complex, and disorganised place where I can share my heart as I journey towards better health and healing through honouring all that I am. And I am so delighted to be moving in this direction.
Today is quite a poignant one for me. Just a few days ago I found out that the Rheumatologist had diagnosed me with Fibromyalgia/CFS, after many months of tests and appointments with a wide variety of specialists to try and figure out why I am so ill. So when I discovered that 12th May is an Awareness Day for both of these conditions, I knew I had to come on here and write a post about it.
You see, the diagnosis may be new to me, but I grew up knowing just enough about ME/CFS to have an appreciation of the impact it can have on the lives of those who suffer from it, and their families. I remember my mum, who was a childminder at the time of her diagnosis, giving up work as it was just too much. I also remember accompanying my dad on the weekly grocery shop to save my mum having to deal with the supermarket for a while. And in the years since, I have watched as more and more health issues have complicated her life.
And yet, despite seeing a close member of my family dealing with ME, and managing other chronic illnesses of my own (namely Hypermobility and Endometriosis), it wasn’t until I began to suffer from the exact same symptoms myself that I truly realised just how debilitating these conditions can be. It’s hard to describe just what it feels like, and my understanding is that it is slightly different for everybody, but I want to try and share a little bit about what it feels like to me and the impact it has had on my life already.
It’s been quite challenging for me to pinpoint the symptoms, not because they aren’t severe but because they are similar to symptoms I have experienced in the past due to other conditions. However, the following have all become much worse than they have ever been, or are completely new to me, and it is these which I find the most distressing and debilitating:
Extreme fatigue and exhaustion – since developing this symptom I am aware that I completely underestimated exactly how bad it was for people with ME/CFS (sorry mum!) This goes far beyond the feeling of exhaustion you associate with having overexerted yourself or the fatigue that comes from lack of sleep. This is an overwhelming and all-encompassing lethargy that fills your entire body.
When it hits me (and it often hits me without warning!) I find myself completely reliant on those around me to pick up the pieces and allow me to drop in bed. Even sitting in bed feels like it takes too much effort, and it is so difficult to concentrate I find it hard to read or watch TV or even communicate some days. And let’s not talk about the days I skip lunch because I simply haven’t got the energy to make myself something to eat (yes, it really can be that bad!)
Brain fog – following on from the extreme fatigue, sometimes I simply cannot clear my head, and the simplest things escape me. I forget to take my medication, and then wonder why I am in pain or my stomach is so upset. The only thing I can liken it to is the effect of severe sleep deprivation during the early days of parenthood, when you’re so exhausted that everything seems to take so much more concentration to make sure you do it right.
You could ask me a question and I might not answer for several minutes, because it takes that long for me to process what you’ve asked and then formulate an answer. And there’s absolutely no point in asking me to make a decision on days when the brain fog hits, just don’t even try.
Joint and muscle pain – this has been quite a tough one for me to connect to the Fibromyalgia/CFS to be honest, because I simply assumed the increased pain was due to my Hypermobility. But I recently realised that it goes beyond that. Sure, my hips kept trying to pop out for a while, but several months with the physio helped to relieve that a lot. But despite increased core strength exercises, I still suffer from daily pain in my hips, pelvis, knees, ankles, back, neck… not usually all at once, but sometimes it happens.
Today is particularly bad – my ribs feel bruised; my pelvis is sore; my knees, ankles, wrists, and elbows all ache; and my forearms hurt where they are resting on the edge of the table as I type… just a small amount of pressure which would never have bothered me in the past.
Migraines, dizziness, and vertigo – again, these are things I have experienced in the past at one time or another, but this past year they have increased in both severity and frequency. Just before Christmas last year I had a six day migraine, and in recent months I have discovered that I sometimes have all the symptoms of a migraine (sensitivity to stimuli like light and sound, an out-of-body-feeling, etc) without the pounding headache, which I have never experienced before and which is very disconcerting!
Some nights I cannot lay down in bed, despite being exhausted, because I’m just too dizzy. Other times, it comes on when I am looking at a computer monitor, mobile phone screen, or even after eating my evening meal. When it happens I simply have no option but to rest in a darkened room as soon as possible until it passes, which can sometimes be several hours.
Nausea – okay, so this one I have suffered from to varying degrees for years due to both IBS and Endometriosis. But never before have I suffered from nausea so frequently, just because I am tired or in pain. In fact it took me quite some time to make the connection between my pain and the nausea, and it was only because I happened to take some painkillers one day and realised my nausea practically disappeared as soon as the paracetamol kicked in. I often underestimate the effect that the pain has on me, and this really taught me just how much my body is struggling to deal with everything right now.
Inability to regulate temperature – one of the first signs I had that something was really wrong, was the fact that I would wear 6 layers to work (a long sleeved thermal vest, a second vest, a t-shirt, 2 cardigans, and a fleece jacket) and I would still be so cold I was physically in pain! Then, when the summer came around I could barely cope with the heat – whilst everyone else was sweating through the heatwave, my body didn’t seem to be doing anything to cool me down, and I relied heavily on the fan to keep me as comfortable as possible.
the impact this has on my life
Anxiety – this is a huge one for me, because the unpredictability of my illness means that I find myself getting anxious over things which would previously have excited me. For instance, I had a major panic attack last summer, because Little Man and I were due to go to London for the Cosmic Kids Fan Event at YouTube. I lay in bed, heart racing, cold sweat pouring off me, as I thought about getting us both down to London, across the city using the Tube, and to where we needed to be on time. I have travelled so much over the years with public transport and it has never made me panic like that before, but a part of me was suddenly aware of how much I was struggling and how I couldn’t guarantee I would be well enough to cope with such a busy day, and that terrified me. We managed it in the end and had a great day, but it took so much out of me.
That same panic hits me regularly as I realise this same unpredictability of my illness (and the severity of debility when it is at its worse) is preventing me from working and providing stability for my family. It’s very difficult to talk yourself out of panic when you realise your anxiety has some logic to it.
Unemployment (and financial instability) – again, this one is huge. My part-time employment ended in January this year, after 6 months of continuous sick leave. At that point Fibromyalgia and CFS had both been mentioned but I hadn’t been officially diagnosed. Even so, it was clear I wouldn’t be well enough to continue working in my previous employment.
I had hoped to make things work as a freelance online media specialist, but unfortunately even a few hours a week has been proving too difficult to manage. I still do very ad hoc work for a couple of clients, but this is 2-3 hours per week total, and nowhere near enough to provide for my family. Just this week I have had to make multiple claims for increased financial support, and there is nothing worse than feeling that a) you cannot provide for yourself and b) even when you try claiming support, you’re not even eligible for half of it anyway. Needless to say, this is a huge impact my illness has on both me and my family.
Reduced activity with the family and friends – this last one tears me apart. When we first moved to our current home, I did lots of different things with Little Man around the city over the summer holidays. Last year the summer holidays were spent mostly with me resting in bed and him watching YouTube on his tab next to me. This year I expect it will be very similar – I simply do not have the energy to do things with him, and that breaks my heart.
Equally, I find I cannot plan days out with friends or even a catch up over coffee, as I am just too ill to manage it. Last week I had to cancel meeting two friends for coffee due to a stomach bug, and the resulting time required to recover from that meant I had to cancel a lunch trip with my Grandma and others from church this week too. Just a couple of months ago I also had to cancel singing in the choir for the church panto, as I was simply too sick to cope with multiple performances.
Most nights you can find me resting in bed, watching Netflix or reading a book, because I simply do not have the energy to stay up any longer… I go to bed before my 5 year old! And as much as he likes simply being with me, sometimes even trying to keep up with his conversation is hard work when I am so tired.
but my story is just one of many…
As you can see, Fibromyalgia/CFS has had a massive impact on my life, and affects my family too. And my story is far from alone. I have been truly blessed over the past year to have found a wonderfully supportive community over on instagram, with people dealing with a wide variety of chronic health conditions, including ME/CFS and Fibromyalgia. I wish I could list them all on here for you, but that really would be a mammoth task… instead I am going to list just a few to help get you started, if you’re interested in learning more.
I was unsure what to call this post, because there are so many things that are heavy on my heart right now. But I think the title I’ve chosen sums it up rather well. For such a long time I have been desperately fighting the uncertainty over my future, the grief I feel over things beyond my grasp, and the vulnerability that comes with accepting that I am sick and that I can no longer give until I first learn to receive. Resisting all of that has taken its toll, and it’s time I learned to embrace it instead.
I hasten to add that this isn’t a new concept to me – I’ve known I’ve needed to do this for years, but knowing something and actually accepting it are two very different things. Even as my health has deteriorated over the past few years, I have refused to acknowledge just how ill I have become, because doing so felt like giving up. Even up until the very beginning of this year, I was determined to make it all work somehow – I’d go freelance and work from home, I’d schedule in time each day to focus on my well-being, I’d cook healthy meals from scratch, and I’d find a way to do all of this and continue to run two blogs, be active in social media groups, and get more involved in my local community too.
How hard could it really be? I thought. After all, I wasn’t quite as sick as I had been when first signed off work last summer. Several months of trying to rest as much as possible had made a difference, but I needed to get going again to help make ends meet financially, and I didn’t want to be held back by my illness anyway. Unfortunately, with all the determination in the world, there are some things you just cannot change. For me, this is my health. I’m not talking about small changes like eating healthier and getting exercise – of course those make a difference. What I mean is that, if you are chronically ill, sometimes you just have to accept your limitations and find a way to work within them. But that it something I am terrible at!
The past 3 months have practically broken me: I’ve been working with several clients on some pretty big projects; I’ve seen my family struggle with my Nan’s final weeks on this earth; I’ve had multiple conversations with Little Man’s teachers as he has been struggling to settle into the school environment; and I have tried to keep my home running as smoothly as possible throughout all this change, all whilst suffering from multiple viruses on top of my general ill health. And yet despite all of that happening, I still continued to try and do more…
When I look at it like this, I realise how unbalanced my thinking really is. And I understand why I live with this constant knot of anxiety at the pit of my stomach, never knowing when a full-blown panic attack may occur. Because I haven’t given myself time to breathe, time to sit in the uncertainty of my life and grieve for all that I had once wished for but which can no longer be. And I certainly haven’t allowed myself to be vulnerable, because that fills me with absolute dread – what happens if I do that and it all falls apart?
So, of course, life enabled me to experience that which I feared the most, didn’t it? This week I was faced with “saying no and letting go” to so many things, things that I not only felt I ought to do but which I really wanted to do too. I had filled my week with fun activities – a trip to the Cathedral with a friend, and singing in the choir for the Church Panto. But a stomach bug stopped me in my tracks and made me realise I simply cannot do it anymore, I cannot continue to pretend I am coping when really I’m so close to breaking.
I toddled off to the Cathedral with my friend, feeling worse for wear but determined to make it through the week, and ended up spending half of the time in the toilets! I then sat quietly in a little chapel, knowing that I had to cancel my plans but so terrified of letting people down. Thankfully my friend was a wonderful comfort that day, encouraging me to allow myself to be vulnerable for once and not worry so much about other people, and I cancelled attending Bible Study that afternoon and Panto Rehearsal/Performances for the rest of the week. I cried so much when doing it, partly because I hated to let others down, but mostly because of what this signified. In cancelling these plans I was truly beginning to acknowledge how ill I truly am right now.
Which led me to thinking about all the areas in my life that drain the energy I simply do not have to spare. Many of them are things I love and am so passionate about, and it breaks my heart completely to have to put them aside right now. But the alternative is continuing until I break, and having been there just a year ago (and again a couple of years before that) I am desperate not to return to that place any more. This time I want to truly embrace the uncertainty of it all, to grieve for all the things I wish were different, and to allow myself to be vulnerable in this space. No more “putting on a brave face” and pretending all is well when it’s not. Wow, that is hard for me to write… and even harder to live!
Which brings me to the point of this blog post, really. I’ve had a good, long (and extremely hard) look at all the things that I have going on in my life and decided that I have to cut back on so much in order to give myself the time, space, and energy to truly begin this healing work. And here’s what I’ve decided:
1. I shall make time every single day to seek out the love of God which I know is helping me through all of this. This will take various forms – sometimes it may be reading a book, sometimes it may be walking in the park, and sometimes it may be sitting in silence. Whatever form it takes, I want it to become a prominent part of my day, helping me to truly embrace the uncertainty of it all, trusting that I don’t have to have it all figured out!
2. Leading on from this, I shall use The Family Patch as my place to simply write what feels important to me, rather than trying to produce “useful” content. And right now that is likely to be a lot about faith. I know that this isn’t everyone’s cup of tea, so please do feel free to unsubscribe or mute updates from me if you don’t want to read this kind of content. But for those of you who are interested, please do share with me your own thoughts and experiences in the comments, as I’d love to hear from you.
3. Even though it is faith-based, I am taking a break from Spirit Kid Network. I simply cannot devote the time needed right now to build up the kind of content it deserves. There is still content to be found over there from last year, plus my free chakra guide for kids, so I’m not shutting it down completely. I simply need to release the pressure of producing new content on a regular basis on both of my blogs.
4. I am also going to limit my use of social media, particularly Facebook Groups. To be fair I haven’t been using Twitter, Instagram, or Pinterest that much lately anyway. But a large chunk of my time gets caught up in Facebook Groups. Most of these are relevant to the work I do at Shortman Media, so it feels a bit risky to step back from some of them, but I really do need to limit my time spent helping others – every short answer I give soon adds up over the length of a week.
5. That being said, I do want to spend a bit more time in The Faith Space, which is a Facebook Group I set up for those of us who wanted to discuss faith in an open and religiously diverse way. I’m not promising anything in terms of how much I’ll actually do on there, but if you’d like to join us please do request to join the group over on Facebook.
All of this means that the limited time and energy I have outside of what I have to do (freelance work, housework, family life etc) is less likely to be eaten up by multiple different things and more likely to contribute to my overall well-being, by focusing on what is most important to me right now. I am a giver by nature – I want to be there for everyone, encouraging and supporting them, no matter what. But that takes a lot of time and effort, which I simply do not have right now.
So, that’s where I am right now – embracing uncertainty (and trusting in God’s plan for me), grief for all the things I have to let go of right now (including all those big, exciting plans I have), and vulnerability (so that others can offer love and support where I cannot). It’s an emotional place to be, and I have cried more over the past few days than I have in months, maybe even years. But that’s all part of the journey, isn’t it?
How often do we put everyone else ahead of us instead of actually prioritising our own self care? How often do we think that in order to be a good friend, spouse, parent, or worker we must put the needs of everyone and everything before our own? And how often does that actually work out for us?
If you’re anything like me, you’ll have spent most of your life putting others first. When I look back on my life I can see how I have done this at every step along the way. And when I actually stop to think about that I realise that there is no wonder that I have been so sick lately. Because by ignoring my own needs I have presented a situation in which my body has had no choice but to say “no more”.
I’ve been thinking about this a lot lately. And I’ve realised that if I’m ever going to truly heal and learn to live in a way that is sustainable to my own health, I need to start prioritising self care. And I need to do it right now.
Of course that’s really hard for me, because it goes against everything I have ever believed about myself and what it means to “be a good person”. It makes me feel selfish and I worry so much about what others might think of me. But that’s where the courage comes in, that’s where my word for this year is so very apt for what I need right now. With courage I can feel that fear and do it anyway. Because it is worth it.
And I wanted to share with you how I am doing that, partly because I’m sure I’m not alone in struggling with this, and partly because another aspect of self-care means using this blog for what I need on this healing journey. But as much as I love to write things down, I also find it really helpful to simply share my heart verbally too. So I took to Facebook Live this afternoon and shared the following… it wasn’t very well planned, it certainly wasn’t highly polished, but it was pure, unadulterated passion that poured out.
I mention several books and resources I’m using in this video, which I have listed links to below if you’d like to check them out. And I’d love to hear about your own ways of prioritising self care, so please do share those in the comments below too.
Today is the Midwinter Solstice, the shortest day of the year and the turning point at which we start the slow journey back towards the long days of summer. And as has become my custom over the past few years, I am taking some time out today to reflect on all that has happened over the past 12 months and what I hope to achieve in the coming year.
I find the Midwinter Solstice really symbolic in helping me remember that nothing ever lasts forever, and brighter days are always ahead. The past few years have felt like a never-ending battle, with ever more challenging situations developing despite my determination to keep going, and keep growing. Over time I have found my strength and resilience waning, both physically and emotionally, to the point where it feels like things will never change. And yet I only have to look at nature to realise that this isn’t so. Right now the trees are bare and the skies are grey, and yet I trust that Spring will come again, it always does.
When I apply this same reasoning to my own life I begin to see that even the most traumatic times in my life have come to an end at some point – my dark nights of the soul never last forever, even when I fear they might. So, when I look back on my Solstice Reflections from the past two years, I could easily conclude that yet another year has gone by and I’m still sick, still poor, still suffering. But the reality is not quite that simple.
My 2014 Solstice Reflections came during a truly traumatic time for me, when I really couldn’t see any way out of the situation I had found myself in. And yet I did, and the next year started off really well. Unfortunately by the time I reached December my Solstice Musings for 2015 seemed to find me back at square one, with another Christmas spent struggling physically.
However I was in a better place emotionally and spiritually than I had been just 12 months before, and so I was able to see that instead of going in a circle I was actually following a spiral dance, coming around to a similar spot but always just a little bit further on. The same can be said for this year too, and I am so very grateful to this blog for giving me a very tangible record of where I’ve been so that I can reflect just on how far I have come.
You see, my focus word for 2016 was “Healing”. I was determined to make sure I did everything I could to help my body heal after several unbelievably stressful years that had taken a real toll on my physical health. I started with healthier eating, regular yoga sessions, and a desire to look after my emotional health by limiting the pressures I put upon myself (which included over 3 months away from Facebook and 5 months away from this blog!) But despite all my best efforts, I ended up more physically sick than I have ever been in my life, which felt like the furthest thing away from healing as possible!
And yet, despite being so physically ill that I couldn’t even get out of bed or think straight at times, I began to realise that I have still been doing a huge amount of healing work. No longer could I ignore my body’s cries for help, I had no choice but to stop and listen. Even more importantly, I could no longer try to pretend that all was well and I could fix things by doing the same old stuff I’d always done. I had to learn to trust in something greater than myself, and accept that there was no quick fix to all of this.
Healing takes time, especially when you’ve put everyone and everything before yourself at the expense of your own well-being for far too long. You have to learn to live in an entirely different way, to accept a slower pace of life, and trust that your world will not fall apart just because you say no to things (even things you’d love to do).
Which brings me to where I am today, on the longest night of the year. Once again I am struck by the deeply symbolic nature of the Midwinter Solstice and its celebration of the return of the light through the darkness. This year has been a dark one in many ways for me, and I am ending 2016 without a firm diagnosis for why I have been so ill, despite countless appointments with numerous specialists throughout the year. But within that darkness there has been so much light for me to find, and I truly do feel as if I am firmly on a healing path, making progress step by step on this glorious spiral dance we call life.
I’ll be back again before the end of the year to share with you the word I have chosen for 2017, I’m so excited about this one! But for now I want to simply wish you all a very Merry Solstice and a Happy Christmas too.
Linking up with #ShareYourYear hosted by Belle du Brighton, as this post sums up the past year for me very nicely. Pop over to the linky to find out what other bloggers have been up to this year – it’s a great way to get a snapshot of bloggers’ highlights (and find new blogs to follow!)
Something amazing has happened over the past few days that has been truly transformational and I am so excited to share it with you. I finally broke through the fear that has been holding me back for so very long and embraced my purpose in life. And boy, does it feel good!
It all started with a simple message, a few words that just popped into my head one night when I was wondering what to post on my instagram feed as an update. If you’ve been following me for a while now, you’ll know that I have been suffering from some really challenging physical symptoms that have left me unable to get out of bed some days, let alone go out to work or enjoy the summer holidays with Little Man. As someone who thrives on being busy and putting everyone else first, this has been far from easy. It has left me feeling lost and confused about my purpose in life, with no idea how I’m ever supposed to make any major changes in my life to get there (wherever there is), when I’m feeling so utterly beaten. So imagine my surprise when this was the message I received…
Amazing, right? I mean, it just blew me away. Here I was, worrying about getting better so that I could hurry up and get on with figuring out this purpose of life business, when really what I needed to be doing was accepting that where I am right now is exactlywhere I am meant to be. The message isn’t anything new, I’ve been talking about blessings within our challenges, and finding strength within weakness for years now, but it hadn’t quite made it through the fear and into my heart and soul in a way that enabled me to break free of that fear and truly embrace what is happening in my life right now.
Because it’s huge, life-changing stuff, and my fear of that was keeping me trapped in a limbo state of knowing I needed to make change but not knowing what that change needed to be. Over the past few months I have been blessed to have support from both Pippa at Story of Mum as well as Michelle from The Joy Chaser, and through our one-to-one sessions I have begun to dig deep within my heart to find the things that drive my passion and break through the fear that’s holding me back. But as much progress as I made, something continued to stand in my way – and that, my friends, was fear.
You name it, I felt it: fear of failure; fear of success; fear of being ill; fear of being healed; fear of change; fear of no change; and on and on the fears went, contradictions within themselves, because fear rarely makes sense! After years and years of one challenge after another, I found myself living in a state of permanent anxiety, my defenses up ready for the next thing to fall apart within my life, and I was exhausted. I didn’t know which way to turn, I didn’t know up from down, right from wrong, all I knew was fear and confusion. And that is no way to live.
But that’s where I was. And you know what? As hard as it is to accept, that was exactly where I was meant to be, because if I hadn’t fallen so very low I may never have set my sights so very high. Within that moment, when the message arrived and I truly understood just how much I had been resisting the idea (“why is this happening to me?” “why won’t life give me a break?” “what is the point of it all?”) acceptance suddenly became so easy. I can’t explain it in any other way than I just let go. And as soon as I did, life began to send me even more messages that I had done the right thing.
Over the following days I saw, read, heard, and watched things that reaffirmed exactly what I knew in my heart. I listened to Marianne Williamson’s weekly talk in which she mentioned we’re always waiting to be rich/healthy/wise so we can help others, but really what we need to do is wake up and say, “Dear God, this is who I am, this is what I’ve got, these are my strengths and these my weaknesses, I give them all to you, now use me, show me my part to play in all of this.” And I knew, in that moment, that I had been waiting to somehow be ready for my life’s purpose, rather than accepting and embracing it even though I may not feel ready. Because if it’s my life’s purpose, then it will happen and I will be given the support I need to do it, if only I ask. Suddenly I understood the depth of meaning behind Matthew 7.7-8…
This same message was repeated to me as I watched Tony Robbins in I’m Not Your Guru on Netflix this weekend. Vicky from Single Mother Ahoy had mentioned it to me, and I finally got around to watching it last night. I wasn’t sure what to make of it at first, but by the end I had cried my heart out at the depth of suffering and then the power of love to truly transform people’s lives. As I listened to Tony talk about what drives him and how much his work means to him, I recognised the same kind of desire within my own heart. We all have our demons, and we all struggle with a lack of love and too much fear in our lives. But love can change everything, if only we let it.
Sometimes we need a little nudge to help us on our way and I want to be that nudge. Because what is life if not a lesson in learning how to see the love all around us and shine that into the world for others to see? My greatest gift in this life, after my ability to love and be loved, is my ability to write and communicate in a way that reaches a person’s heart and soul. When I allow it to, the message I need to share flows through me in such a powerful way. Words pour out of my mouth or onto the page, and teach me all I need to know as it happens. I have known this for years, but I have resisted it so much. I have been on a journey of denying my gifts and even turning from the faith and spirituality that grounds the work that I do. But no more. I can feel the words filling my heart once again and I can do nothing more than let it out.
Which is why I have started writing a new book, one that is based on the principles of some “power cards” I made myself last week. It is a book about a journey, from fear and resistance to love and acceptance. It is about healing and life. And it is a pure joy to be writing. I haven’t felt this excited about writing in years, and I just know that this book as a great gift to me, because it is helping me embrace my life’s purpose, without fear. And I truly hope it will be a great gift to you too.
It is a big dream, and part of a larger picture of what I feel called to do in my life as I move forward from this space. I have a strong and loving voice, and I want to use it both here and at Spirit Kid Network, to help encourage and inspire you to find your own big dreams. Because within our biggest dreams lie our life’s purpose, which is ours to take at any time. So what are you waiting for? Break through your fear, find your life’s purpose, and allow yourself to dream!
It’s funny, isn’t it, how things that inspire us can also be the things that stress us out and make us feel bad about ourselves. The internet is particularly good at presenting these things to us, don’t you think? All those Instagram posts and Pinterest boards and Facebook memes that show us, time and again, that we do not have to be beaten by life’s circumstances, that we can choose to thrive even in the darkest of moments, and that anything is possible if only we decide we really want it, are all shared with the greatest of intentions. And most of the time they achieve what they’re meant to – they inspire us to aim for something better. And yet, sometimes they can make us feel so much worse, because they seem so out of reach for us. Have you ever noticed that?
Don’t get me wrong – I love a good inspirational quote, positive affirmation, or success story. But sometimes, just sometimes, it all gets a bit unbalanced. We see snapshots of people’s lives, hear the stories of how they overcame difficulties to achieve great things, without ever truly seeing the reality of what they had to overcome in the first place. We come into the story at the end, after the battle has been forged, and though we may be shown snippets of the battle, a quick overview from where they were once to where they are now, they present us with the idea that it’s not okay to not be okay.
Maybe it’s a personal thing, maybe this isn’t relevant to you at all, but I’ve found that there is a very big difference between wanting to make change in your life because you want to improve it, and feeling like you have to overcome a challenge because it’s somehow unacceptable for you to be struggling with it in the first place.
Take, for instance, my healing journey right now. I am so terribly sick at the moment, and I am so anxious and stressed about what this means for me and my future. I do not want to be defined by my illness, and I certainly don’t want it to control my life. In that way, I am completely inspired by those who share their stories of overcoming ill health to become happier and healthier than they ever have been.
But on the flip side of this, I feel pressure to not succumb to ill health, to make sure that I do everything in my power to ensure that it doesn’t define who I am and what I do, so I hide the struggle and aim to be positive, even when deep down I am terrified. Because, at some point along the line, I have come to believe that it is not okay to not be okay.
I feel shame that I have been signed off work sick, I feel guilty that I am so heavily reliant on my family for support and have hardly seen friends in months, I even feel bad that the receptionists at my GP surgery now know me by name, and worry that people will judge me as a hypochondriac when I list off all the symptoms and specialists I am seeing right now. And this all stems from that belief that it is not okay to not be okay, that I have to somehow fight this battle and come out victorious, ready to shut the door on this stage in my life and show how I overcame the odds to create an amazing life for myself, whatever that may be.
But here’s the thing – this is a false belief, I know it is, but it is so hard to break. Because it is not alone, it is supported from all sides by similar beliefs we have ingrained into our psyche: it’s not okay to be unproductive; it’s not okay to feel sad, anxious, or depressed; it’s not okay to need help; it’s not okay to fail; and so on and so forth. We live in a society where mental health is still a taboo subject for many, and being poor, sick, or out of work is portrayed as being something you can simply change, if only you tried harder. And we’re so used to that mentality, that we don’t even think to question it.
I know that my shame and guilt and fear right now all come from these very beliefs. I recognise that my habit of worrying over the future and desperately trying to fix things, come from this feeling of not being good enough. I understand that I am my own worst enemy, and that I need to change my own perspective so that I begin to truly believe that it is okay to not be okay. Because right now I’m not okay, far from it. Right now my battle is with myself, to learn that it is okay to simply be and that doing so doesn’t mean I have lost.
Inspirational change doesn’t happen overnight, it is a journey that begins with a single step. And sometimes that first step is accepting that it’s okay to not be okay, at least for now.