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Learning to Trust the Body’s Ability to Heal

Do you believe that your body has the ability to heal itself? Or do you think that some things like age, chronic illness, and mental health problems are beyond any natural healing ability we may possess? Are some people naturally gifted with good health, whilst others suffer with no hope of a life beyond their limitations, or do we all have the opportunity to gain optimal health, whatever that may look like for each one of us?

learning to distrust the body

I’d love to say that there has always been a part of me that at some deep level believed in the body’s ability to heal, but to be honest with you that simply isn’t true. I have been sick, to some degree or another, for most of my life. I was diagnosed with Asthma aged 2, and so some of my earliest memories are of concern over my ability to breathe comfortably. Whilst I seemed to naturally outgrow this particular challenge, by the time I reached puberty other health issues had already stepped in to take their place.

My hypermobile form of Ehlers Danlos Syndrome (hEDS) had made me so clumsy I was regularly at A&E for an x-ray or because I’d got concussion or needed a wound cleaning. And once puberty arrived I was debilitated with crippling cramps, horrific nausea, and incredibly heavy and irregular periods. My teen years were spent trying to cope with these changes in my body, things I believed I had no control over, and I ended up heading into adulthood thinking that this was just my lot.

belief in others vs belief in self

As a result of this, I began to trust in doctors and medication as my only real option for any semblance of a “normal” life. And whilst there is nothing wrong with putting faith in modern medical science, there is a real danger in putting all of your hope into a medical system that still has no answers for many health conditions affecting the world today. If I had an accident and required emergency treatment, for instance, then I would seek out the help of a trained doctor. Likewise, if I developed an acute infection, I would visit my GP. These are areas in which modern medicine excel. But when it comes to chronic conditions, this is often far from the case.

My own experience has been one of seeking help from a variety of doctors and specialists over many years, always putting my hope in the chance that this doctor may finally have an answer for me, and almost always being highly disappointed. I was 17 when first diagnosed with Hypermobility, and 31 before anyone mentioned the term Ehlers Danlos Syndrome to me, explaining that my digestive health issues were probably connected to the same condition affecting my joints. But even with that explanation, there was no real helpful treatment options.

Endometriosis is another condition which has plagued my life, leading me to be on some form of contraceptive since I was 15 (most with very negative side effects), and going through no less than 4 pseudo-menopausal states in attempts to limit my symptoms. Yet you can imagine how many extra symptoms those brought up for me. So, you see, putting all of my trust in the doctors who have no real answers as to why these conditions occur nor how to adequately treat them, led to a deep distrust of my own body. If the doctors can’t even manage it, then how can I?

Image of a stethoscope with the words, "putting all of my trust in the doctors who have no real answers as to why these conditions occur nor how to adequately treat them, led to a deep distrust of my own body. If the doctors can't even manage it, then how can I?"

changing the dynamic

Which brings me to where I find myself today. After 3 decades of believing I was simply a “sick person”, whose lot in life was simply one of physical pain and discomfort, I am finally starting to challenge that belief. I’ve spent the past 3 years of my life becoming increasingly more and more debilitated, to the point where my body barely functions most days. I can trace the initial increase in symptoms to a very specific point in 2015, when a virus combined with a very busy period in my life led to a complete overwhelm of my system. And yet I know that whilst this was the tipping point, it wasn’t the start of this downfall.

A series of events following my pregnancy and becoming a parent to a child with additional needs, led me to disregarding my body’s own needs and placing everyone else’s first. This was a recipe for disaster, given my body’s natural disposition towards ill health. But I didn’t listen to my body’s needs, nor the messages it sent me through my intuition and increasing symptoms. Because I already believed that this was simply my lot in life, to suffer. And that belief goes right back to my childhood.

This ill health I have now is not a new thing, it is something that has developed over a lifetime of distrusting my body, and placing my belief in external sources rather than my internal ability to heal. And when I began to realise just how far back this goes, I realised that I had impossible expectations of what healing might look like. I was hoping for a “quick fix”, something which would take away the most unpleasant symptoms I have each day, rather than building up healing and resilience from my very core beliefs about myself. Those “quick fixes”, which are often medications to alleviate symptoms, are fine in and of themselves, but they won’t lead to long-term healing. That has to come from within.

Image of two women doing yoga with the words, " I will always have a genetic condition that affects the connective tissue in my body, and so I will always have to adapt what I do to support that rather than aggravate it. Yoga postures must be adapted, diet must nourish without irritating, adequate rest must be incorporated into my day, and some days I'll just have to accept that it's a bad day"

healing to your optimal version of health

Now, before I go any further I want to make something abundantly clear. I am not proposing the idea that the body can heal from anything and everything. This isn’t some ‘miracle cure-all’. Neither am I suggesting that it is our own beliefs that cause illness. Such thinking is overly simplistic and, quite frankly, dangerous. It suggests that those with serious health conditions can simply will themselves to be better through the power of positive thinking. And that’s bullshit.

Too often those of us in the chronic health community are told that if only we did this, or changed that, we’d miraculously heal. Such recommendations, no matter how lovingly given, are dis-empowering at best and damaging at worst. People need to be believed, they need to have their symptoms respected, and their daily efforts recognised. Life is hard for all of us, and for some people that is most profoundly felt through their physical and/or mental health.

But that doesn’t mean that those of us who do struggle with our health cannot aim for our own personal version of optimal health. And that will look different for everybody. For me it means that I will always have a genetic condition that affects the connective tissue in my body, and so I will always have to adapt what I do to support that rather than aggravate it. Yoga postures must be adapted, diet must nourish without irritating, adequate rest must be incorporated into my day, and some days I’ll just have to accept that it’s a bad day and in order for my body to heal I need to honour what it’s telling me in that moment.

The same goes for my anxiety and the pain felt regarding certain events that have happened in my life. No amount of positive thinking and lifestyle changes will affect my ability to have more children. But I can work on honouring the fact that my body carried and gave birth to this beautiful child of mine, and that my love for him is enough. I can stop beating myself up for not doing more, and cherish what I can do.

Image of a woman looking out to sea with the words, "Sacred work is beautiful, but it isn't easy. It means facing those parts of yourself that you hate the most. It means working with your limitations, rather than trying to work despite them. And it means knowing that it took you a lifetime to get to the place you are right now, so it's going to take you a lifetime of learning to trust yourself and your body."

healing work is sacred work

Over on instagram, my profile says that I am on a “sacred healing journey”. This is something I came up with last year, and it has stuck. Healing requires going into the very depths of your being, having the courage to face the darkest parts of your soul, and learning to trust in your body’s ability to heal. If that isn’t sacred work, then I don’t know what is.

But it’s hard to recognise the power and impact of what you’re doing, when it feels like you’re simply lying in bed,  or battling through your inner demons just to make it through the day. Some days it feels like you’ve done nothing but simply survive – and that’s sometimes exactly how it is. You need to acknowledge these days as a part of your journey, but don’t let them define you. Because those days are the ones which remind you of your feelings of inadequacy and powerlessness. Those are the days which whisper that you aren’t enough, and that this is simply how it is. Those are the days you simply have to survive, knowing that a new day will come.

And when that new day finally comes, you do the sacred work. You go within, you trust yourself, and you learn to find a new way of living. Sacred work is beautiful, but it isn’t easy. It means facing those parts of yourself that you hate the most. It means working with your limitations, rather than trying to work despite them. And it means knowing that it took you a lifetime to get to the place you are right now, so it’s going to take you a lifetime of learning to trust yourself and your body. This isn’t a quick fix. This isn’t a cure. This is life.

image of a woman using her laptop whilst sitting in bed with the words, "we need friends who understand where we're coming from and will walk with us. In the past this was often limited to what was available in your local area, but nowadays you can easily connect with people from across the globe via the internet too."

trust your intuition, choose your tools, and find your community

Because sacred work is so hard, you need to surround yourself with the tools and community to support you along the way. Nobody can hope to do this alone. There is a reason that humanity has long sought community with those who are also on the same path – we need friends who understand where we’re coming from and will walk with us. In the past this was often limited to what was available in your local area, but nowadays you can easily connect with people from across the globe via the internet too.

Of course, the problem with this is that there can often be too much information and too many options to choose from. How do you know what will work for you? Well, I’ve found that the best way is to try out a few things and see what your gut instinct is telling you. If something feels right, go with it. But if something feels wrong, drop it, even if everyone around you thinks it is the best thing ever. It is only the best thing if it feels right to you.

I experienced this recently quite significantly. During meditative time (which I have always resisted), I felt an overwhelming rush of love, and realised I was far from alone. From that experience, I began to realise areas where I had been trying to control the uncontrollable. For me, this was most pronounced in my diet. Because of my digestive issues I had gradually restricted my diet more and more over many years, and I had ended up surviving on mostly dry carbs (jacket potatoes, oatcakes etc) and snacking rather than eating proper meals. I was missing out on so much protein and fat, and not allowing my digestive system the power to work effectively (and it’s a sluggish system, so it needs all the help it can get!)

As I began to consider changing my diet, bringing in foods I’d have never eaten before through fear, I started out on the Autoimmune Protocol (AIP). However a week into it I realised that it was not healthy for me. I was beginning to fear eating the wrong things, and my body was wanting less meat and a few more carbs. So I followed my gut (pun intended) and dropped the AIP diet in favour of trusting what my body was specifically asking me for. I had begun to recognise the difference between a craving (chocolate) and an actual need (carbs), as well as recognising that my body was happier eating stews and soups rather than roast dinners.

Image of someone eating soup with the words, "My intuition, once I actually tuned in and listened, had told me the same thing an ancient medical practice was also suggesting. By learning to trust my body's ability to heal, I had tapped into what I needed."

About a week later I stumbled across an Ayurveda dosha quiz, and discovered that my constitution is strongly Vata (air). The description of Vata not only perfectly described my natural characteristics, but it also explained many of my current symptoms. It even recommended eating soups and stews, to avoid food that was too “dry”. My intuition, once I actually tuned in and listened, had told me the same thing an ancient medical practice was also suggesting. By learning to trust my body’s ability to heal, I had tapped into what I needed.

Whatever tools you choose to use, and whichever community you choose to join, remember always that flexibility is the most important thing you can ever embrace. Your needs and preferences will change over time, both as you age and as the circumstances in your life ebb and flow. What works for you now will be completely different to what worked for you last year. So don’t feel as if you have to stick to something long-term if it isn’t working for you anymore. Try new things and go with the flow.

belief is everything

More than anything else, healing is only possible when you believe it is. This has been shown countless times within studies using placebos, for example. That’s not to say that the things you do or take, be that lifestyle choices or pharmaceutical medication, have no effect. Of course they do. Exercise has an impact on the body. Meditation has an impact on the body. Diet has an impact on the body. Medication has an impact on the body. It all does. What I mean is that it is your belief in the possibility of healing that amplifies the effect.

For instance, I have been seeing the herbal medicine team at my local college for about 18 months now. I have a review with them every 4-6 weeks, and we tweak the tincture accordingly. And whilst there was a small, immediate effect from taking the tinctures, it was only once I truly began to believe that this medicine had the power to change my life that I started to see real effects. And, interestingly, most of the effects have been psychological rather than physiological so far.

I’ve begun to trust in my body’s ability to heal itself, and been making changes accordingly. I removed my Mirena and became contraceptive free for the first time since my teens last Summer. And over time I have started to understand and accept that some of the very physical challenges right now are not going to vanish overnight, because my body has to rebalance itself after years and years of neglect and abuse on my part. I have hated on my body for such a long time, learning to love and trust it is a huge thing. And I truly believe therein lies my ability to heal.

Lady standing in summer dress with arms wide dancing as the sun goes down in the distance

Black and white image of woman holding arms in the air, her hands in the shape of a heart. The words, "experiencing God" are overlaid.

Experiencing God – How I learned to let God in

How do you experience God? Do you ever feel a physical experience of the Divine surrounding you? Or is it more of a faith-based experience of trusting that God is there, even if you never feel His presence?

For me it has been mostly the latter, although I have had times in my life when the former happened too. And I’ve been desperately hoping for that overwhelming physical experience of being surrounded by love and support for quite some time. But I just couldn’t find it.

pushing God away

If you’ve been following my journey, either here on the blog or over on instagram, you’ll know that life has been unbelievably hard for us over the past few years. It all started in 2011, when the pregnancy I had dreamed of for as long as I could remember, turned into the hellish torture that 9 months of Hyperemesis Gravidarum and additional complications bring with them. During that year my entire experience of who I am and who I thought I was meant to be came crashing down.

The following year, as my baby began to grow up faster than I thought possible (how could the months fly by when a year earlier they had dragged into a seeming eternity?) I remember being so angry with God. Why had He made me so deeply maternal that all I had ever dreamed of was becoming a mother, if doing so was going to destroy my body and my soul? I had to choose not to have another baby, and it broke me.

Which led me to starting to write a book and working closely with a charity supporting women suffering from severe pregnancy sickness. I thought that maybe this was the reason for my suffering, so that I could use my writing and organisational skills to help others. And in my desperation to find a new purpose (and avoid the deep grief I was feeling), I ignored all the warning signs that this wasn’t where I was meant to be.

reaching breaking point

Which leads me to 2014, which I have described in the past as my “breaking point”. It was a year in which I should have been happier than ever, but in reality I was falling apart. I was ill-equipped for the role I ended up in, and by the time I learnt the importance of boundaries I was already broken. I remember walking to pick my son up from nursery and I would just sob the entire way there. And I remember lying awake at night, running conversations around in my head and feeling sick with anxiety over it all.

In reality, my time working to support others was more traumatic to my mental health than my pregnancy had been. And the impact of running on that much adrenaline for so long began to have an effect on my physical health too. By the end of 2014 I had been signed off work sick, and I was miserable.

Then, one evening I decided to watch a replay of one of the Thrive Moms retreats, and at the end there was the option to pray and ask Jesus into your life. I had always resisted this, given that I wasn’t sure I really fit into the Christian community. But that evening I really felt the pull to join in. So I did. And I felt an overwhelming sense of security fall over me.

I remember ending the retreat and continuing my prayer, saying to God, “okay, I have absolutely no idea what I’m supposed to be doing, I don’t know how to get out of this situation, please, show me the way.” Immediately I thought of the word, “Surrender“. I just knew, in that moment, that I had to surrender everything to God, and so I did. A week later I found out I was being made redundant from my role, and I thought, “well there’s an answer to a prayer for guidance on next steps!”

learning to surrender

I remember, at the time, it all felt so simple. Nothing seemed to sway me, as I was riding high on the experience of having felt God with me so clearly. I had experienced moments of being connected to the Divine in the past, during meditation or whilst out in nature, but I’d never received such clarity in the moment. It was like a whole new experience for me, and I was on top of the world.

It felt like nothing could bring me down. I was turned down after 3 job interviews, each time because the employer felt like I was over-experienced (I was a graduate coming from a managerial position, applying for part-time admin work). I could see their point, but I also knew that I needed to take a step back in my career. I had a 3 year old son, and I wanted to spend more time with him whilst he was still young. So I kept applying, trusting that the right job would present itself.

A few months later it did, and I began working in a charity shop. I enjoyed the work, and it gave me 4 days a week to just potter around the house and enjoy being with my family. It felt perfect and I honestly thought, “this is it”. And then I got sick.

My health began to decline rapidly until I was signed off work sick in the Summer of 2016 and never returned. I would work 3 days and feel like I had the flu the rest of the week. I would get migraines lasting for days. I would wake up and feel like I would vomit every time I moved. My hips and pelvis became so unstable I could no longer use the stairs in our home properly. I became pretty much bed-ridden, and life was hard.

Whilst this was happening my husband’s health also declined, and we both ended up out of work and reliant on a cruel benefit system. Our son was also diagnosed with Autism. And within a couple of years my extended family experienced so much grief and pain (my Nan, my Great Aunt, and my Aunt died, and two of my uncles were diagnosed with cancer). It felt like blow after blow, and I felt incredibly worthless when my own health kept me from being able to support my family in any useful way.

faith in the darkness

However, throughout all of this my faith began to blossom. At a time when I realised I could no longer rely on myself, I had to learn to rely on something greater than myself. I began reading more about Christianity, and thanks to books like Setting Jesus Free, Jesus Through Pagan Eyes, Convictions, and The Case for God, I began to realise that my own relationship with God and Jesus was not only beautiful, it was also okay.

I had long believed that I would never fit in, and my fear of being “found out” for my more liberal (and “out there”) beliefs kept me from joining fully into a faith community. And yet I desperately sought it. I remember clearly feeling God impress upon me that it was time for me to take the next step, as I sang a hymn one Sunday in church. I realised it was time for me to choose to affirm my faith, and that day I spoke to the minister about being baptised.

Since then I have grown deeper and deeper in my faith, both through being in community with others who support me and through my own desire for answers and support during my suffering. One of my favourite parts in the Bible has come to be 2 Corinthians, in which Paul writes about his own suffering:

Man sitting by a wall, head bowed, with text from 2 Corinthians 'Three times I pleaded with the Lord to take it away from me. 9 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. 10 That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.'

I cannot even begin to comprehend Paul’s experience of being content with his weakness, of which he experienced far more than I ever will. And yet, this speaks to me so powerfully of the idea that when we are weak we are made strong, at least where our faith is concerned. It is within having everything stripped away, all the things I thought that mattered most in giving me value, that I realised the true value of my worth as a human. It doesn’t lie in what I do or what I achieve, rather it is in my ability to live a good life, wherever I happen to find myself.

learning to let god in

And yet, despite all of these developments in my faith, I continued to feel distanced from God. It wasn’t so much that I didn’t have faith, for I have always had that in abundance – in my darkest moments I have raged at God, and it’s hard to be angry at something you don’t believe in! Rather, it was that I felt like I was learning to understand God on an intellectual level whilst holding Him at arms’ length.

That’s not to say that the intellectual stuff isn’t important, because it is. Exploring the wider context of any spiritual teaching to discover how it might be relevant to your life is crucial. I’m a huge advocate of Biblical Literacy, as well as Interfaith Dialogue. I find it all fascinating, and something which deepens my faith. But there’s only so much you can read and think about faith before you need to experience it too!

So over the past few weeks I’ve been purposefully asking God to help me take that step towards him, opening my heart to the experience of Him, so that I could know Him in a deeper way. I’d become so caught up in trying to understand the nature of God that I’d lost sight of that experience I knew and recognised as the Divine. And over the course of a couple of weeks I felt myself being guided to make little changes, all of which left the gates open for God to sneak in.

so *that’s* what god is

This all led to a wonderful experience the other night, when I was laying in bed thanking God for having helped me to see changes I needed to make in my life. I knew that the clarity I was receiving could only be coming from a closer connection to God, and I was feeling gratitude for that. As I thanked Him, I felt this sudden rush of love sweeping towards me at great speed from all directions. And in that moment I knew – this was God.

“So, that’s who you are!” I said, smiling to myself. “How could I have forgotten?” I couldn’t describe the indescribable, and yet I found the words to express the experience. “You’re love, pure and simple. You’re everything. You both male and female, whilst also being neither of those things. You just are.” It all made sense, and though I felt the feeling ebbing away as I got caught up in my attempts to verbally describe the experience, I knew that a fleeting moment was all that I needed. When something is so powerful, you only need a momentary glimpse to keep you going.

I know now that I’ve been worrying too much about whether I experience God or not. The experience was beautiful, and I wish I could bottle it up and share it with everyone I know. But that’s not how it works. It isn’t necessary to “bottle it up”, because it is there for anyone to experience, at any time. God doesn’t stay away from us, it’s we who keep him at what we think is a safe distance, when we are too caught up in thinking we have it all figured out.

embracing my weakness

I also know, without a doubt, that I’m going to repeatedly do that throughout my life. I’m only human, after all, and I will often believe that I know what is best for me. Life experience has taught me very clearly that I often don’t, but I’ll still fall into the trap of believing I’m doing okay on my own. This is especially true when life is going well, but also true when things start to go wrong and I feel like I need to fix it.

So whilst I am a very long way from what Paul describes as being glad in his weakness, I can now see the depth of the truth within his message. For it is when I am brought to my knees, whether through pain or awe at the beauty of this world, that I truly open up to the experience of God.

Black and white image of woman with arms above her head, her hands making a heart shape. The words, "Experiencing God, how I learned to let God in" are overlaid.

Image of a tree reflected into a still lake, with the word, "Peace, my word for the year 2019"

Peace – My Word of The Year for 2019

It’s that time again, when Christmas is over and the last few days of December seem to be filled with both confusion (what day is it, again?), and reflection on another year passing by.

I find that this almost limbo stage of the year is the one where I either find a renewed sense of hope or I am filled with a sense of despair. There doesn’t seem to be an inbetween state for me, and more often than not my despair leads to overly optimistic plans as I determine to have a better year to come.

This is certainly true of where I found myself last year. I chose the word “Create” as my focus for 2018, and came up with 18 ways in which I could create more health, happiness, and success in my work. I was determined to avoid accepting how ill I was and how much I needed to give up in order to survive. I truly believed I could make things better, if only I tried harder. How wrong I was!

Looking Back at 2018

2018 has been plagued with so much stress and fear and guilt and pain. I barely left the house for the first half of it, and although things got a bit easier as the Autumn came along, it’s still been a long, hard slog. And it isn’t over yet. We still have massive financial insecurity. We still have two tribunal hearings to face at some, as yet, unknown point in 2019. And I’m still sick.

That’s not to say 2018 was all bad. We moved to a lovely bungalow in May, and I have been reflecting over the Christmas period on just how grateful I am to be here and not in our old home. Tim chose to be baptised, and we’ve both become more involved with the church through Bible Study and a few events. And Little Man has been coming on in leaps and bounds at school, thanks to better support and a greater understanding of his needs.

2018 has been a good year in many ways, but I cannot help but look back and realise that my hopes and dreams for this year do not reflect that. This time last year I felt desperate to fix things. I didn’t want to be sick (who does?) I didn’t want to be reliant on the state financially (who does?) And I certainly didn’t want to give up all the things that I felt gave me worth (who does?) Looking back at my post from this point last year, I could say 2018 was the biggest failure ever. But, I’m choosing to see it a different way…

Finding a New Perspective

Instead of seeing all I didn’t achieve as a failure, I’m trying to see it as a necessary step on my journey of self-discovery. I’m trying to see all the times I felt like I was knocked back as a swipe at the unnecessary burdens I placed upon myself to fix something that was out of my control. And I’m trying to see my brokenness as part of my healing, because only in my brokenness do I stop trying to rely on myself and turn to something greater than who I am on my own.

Essentially, I’m hoping to find peace. The word came to me as I tried to calm my mind before bed the other week. I had started to wonder what word I could choose to focus on in 2019, and it simply came to me. Peace. I tried variations on the theme, things like rest, reflection, and acceptance, but essentially it all came back down to peace. Pure and simple.

But what do I mean by peace? Do I mean an end to suffering? Well, no, not really. Suffering is, unfortunately, a part of life. So I don’t want to find a peace which is reliant on good times in my life, nor do I want to find a peace that exists despite hard times. No, what I really want to find is a peace that encompasses both, one which reminds me that it is okay to celebrate my joy and express my despair. I want to feel peace wherever I find myself, even when it’s uncomfortable.

The Difference Between Peace and Acquiescence

I want to stop trying to fix everything, and be okay with not being okay. That’s not to say that I will suddenly stop feeling passion for change where I see injustice (I’m never going to have peace with a government which cruelly inflicts pain on the most vulnerable in society, whilst protecting those with the most, for instance). But I hope to stop feeling such intense levels of fear, anger, and guilt on a personal level. I want to stop angrily watching the news unfold, with adrenaline coursing through my body, and instead learn how to channel that energy in other ways (what they may be, I do not know, but I hope to find out).

And therein lies the crux of this whole thing – I want to find peace, even when I don’t know how that will come. This isn’t an active thing, something I can force into being. I’ve tried that, and it doesn’t work. If anything, the more I strive the less peace I feel. The more I try to fix things, to find control in the uncontrollable, the more frantic and anxious and out of control I feel.

And as my body has a tendency to overreact with adrenaline (thanks EDS), this constant cycle of trying to control the uncontrollable has led to an almost permanent heightened state of awareness. The smallest things set off a rush of adrenaline these days, and it’s exhausting!

But whereas I have tried so hard to counteract that with affirmations, meditation, yogic breathing etc over the past few years, I now want to find a place of peace where it’s okay to feel out of control for a while, to ride the waves and trust that there is peace to be found within the madness. Because that’s where I’m at right now, and I can no longer pretend it is only fleeting and I’ll suddenly find a way to snap out of it.

Exploring The Power of Peace

When I was thinking about putting this post together, I was trying to find a quotation which might sum up how I feel. And this verse from Lamentations really struck me:

“I have forgotten what health and peace and happiness are” (Lamentations 3:17 Good News Bible translation).

If there was one verse in the Bible which summed up how I feel, this is it! Okay, maybe not the happiness part, I still have that in abundance. But health and peace? Those two I’ve truly forgotten the feel of. I get glimpses of them from time to time, but they are always fleeting. And I believe they are both intrinsically linked for me, too.

Without peace I cannot truly recover my health. For a long time I thought it was the other way around and that a return to health would bring peace. And it would, of course, in some ways. Better health would mean a return to work, a reduction in financial stress, and an even greater reduction in the guilt felt by the pressure put upon my family by my illness.

But recently I’ve begun to realise I’ve been looking at it the wrong way around. Any peace which comes from better circumstances isn’t truly peace at all, but rather ease at the situation. It may seem like I’m just splitting hairs here, but peace and ease are two very different things. Peace, to me at least, means knowing that at some level things are okay, even when on the surface they are far from it.

Finding The Peace Which Surpasses All Understanding

Which brings me around to faith. I’ll be honest with you and say that whilst my faith has become stronger than ever before over the past couple of years, I still struggle with many aspects of it. It’s almost like the harder life gets, the more I turn to God. But the more I turn to God, the more questions I have.

Not about God’s existence, that has never been an issue for me (in my darkest hours I’ve been the most angry with God – it’s hard to be angry with something you don’t believe in!) No, my questions are more about the nature of God and how I experience that in my everyday life.

I feel like God is just out of touch, supporting me and loving me but in a far less intimate way than I would like. I feel like I’ve been holding God at arms length, not quite willing to open up my heart fully. I’ve been stuck in an intellectual desire to understand God, rather than an emotional desire to know God. And there is a big difference between the two.

So with all of this in mind, I have decided to keep my plans for the year minimal. Instead of setting goals such as reading the Bible and doing yoga every day, I want to wake up each morning and tune in to how I’m feeling and what I need that day to find peace.

I want to open up my heart to the possibility of peace, and see what happens. And I want to do so in the knowledge that whatever happens is okay, even if I feel like I fail. Because the peace I hope to find is the, “peace which surpasses all understanding” (Philippians 4:7).

Image of two pumpkins surrounded by lit candles on a forest floor

Samhain Reflections

October 31st marks Halloween or Samhain (or even All Hallow’s Eve), depending upon your personal tradition. Halloween has always intrigued me, since long before I began to explore the history and culture behind it. But the more I have learnt about it, the more it has held a special place in my heart. This is particularly true of the more Pagan roots of Samhain.

Within the Wheel of the Year, Samhain falls at the third and final harvest of the year, and so marks the end of Summer. It is a time of giving thanks for the warmth and light of the Summer months, and preparation for the cold and dark days ahead as Winter draws in. And as today was one of the first days we had to de-ice the windscreen before the school run, I am painfully aware of how long the Winter can be!

(As a side note, Little Man refuses to put on his new Winter coat until December 1st, no matter how cold it gets, because for him it can’t possibly be time for that until the month when Winter officially begins comes around.)

But it’s not just the changes within the physical world that we celebrate at this turning point in the year. For many, Samhain is also about going within and reflecting on the changes in our personal lives. And at a time when the outer world is slowly dying away, we can choose to look at the things that are falling away within our own being. Whether that’s old habits, thought-patterns, or actual physical things like ending a job or moving home, there is always some change we can focus on. Because if there’s one thing we can be certain upon in this life, it’s that change will always happen.

In the past, my reflections at this time of year have often focused on the things which I wanted to let go of, or hopes for a kinder future after months of testing times. And had you asked me about this a couple of months ago, when I was completely bed-ridden by the affects of the Summer heatwave on my health issues, I’d have told you that’s where I thought I’d be right now, desperately hoping for change. But here’s the thing, I’ve spent so much of my life waiting and hoping for things to change within my outer world, that I completely underestimated just how powerful inner change could be.

This Samhain I find myself still in a battle with the DWP, back in debt and desperately trying to manage our finances whilst we’re both too sick to work, and frustrated by so much that is happening in the outer world (don’t get me started on what’s happening in the political world right now). But, I am feeling so much more content than I have done in such a long time, and that means that instead of hoping for change to my circumstances I am able to accept them and live my without the high level of fear and helplessness that have been my constant companions for the past decade.

Because, for the first time ever, I have become aware of harmful patterns of behaviour that have affected so many of my decisions and allowed me to end up in some of the most painful situations. It started with the sudden realisation, as the Summer drew to an end, that I have spent my entire life seeking approval. It seems silly to say that I hadn’t realised this before, but as much as I had known I had issues with “imposter syndrome” and never feeling “good enough”, I hadn’t made that additional step to realising that my behaviour was one of seeking approval from others. And, more importantly, seeking it from people who would never be able to give it.

I realised that there is a true beauty in the way that I view the world, and that my inability to accept the status quo had led me to trying to create change whilst simultaneously trying to “fit in” so that I gained that approval. I was torn between walking my own path and towing the line. And it was so incredibly painful that it’s no wonder I got as sick as I did. Nobody can live like that.

Coming out of that initial realisation were several further lessons. The first was that I had spent a large part of my life playing out certain roles which didn’t feel right. No wonder I’d never managed to stay in a role for more than 18 months, and had changed careers completely on so many occasions. What I wanted to do (i.e. write), felt like something that other people got to do. I honestly believed life had to be hard. Even when I chose to write a book, I didn’t have the confidence to just do it. I sought approval for it. And even though I knew how hard I had worked on it, not to mention the quality of that work, I enabled a situation where this would be questioned.

That same pattern is reflected in all areas of my life. I felt like I had simply “bluffed” my way through university, instead of realising that I am simply very good at languages. My tutors were right when they told me I wasn’t ambitious enough, and was capable of achieving more. But, instead, I felt like a fraud for receiving the results I did! The same goes for my blog. I’ve spent years feeling like I wasn’t “good enough”, because I don’t get the kind of page stats that others do. And yet, as I said before, I know I am a good writer, and that stats aren’t everything.

Basically, the past couple of months of my life have been a massive unfurling of the layers of personas I have tried to fit into throughout my life. It has reached every part of my soul, to the point where so much deconstructing has been happening that I feel like I no longer know who I am. And yet, I’m okay with that. At times it is intensely painful, and I scramble desperately to figure out who I am if I am not all of these things I always thought I was. Especially when I question whether people will like the “real me”. But mostly, it is a joyous unravelling of a tangled web which has held me captive for far too long.

And so, this Samhain, I am celebrating the falling away of these old masks I have worn. I am saying goodbye to the patterns I have allowed to rule my life, thanking them for the lessons they have given me along the way, but grateful to see them finally go. And I am welcoming the darkness of the coming months, as a time of quiet hibernation and reflection, as I allow the spark within to begin to grow in warmth and brightness. Today I am grateful for change, because it means that healing is always within our grasp!

Happy Samhain.

 

Ch-ch-ch-changes!

Wow. I can’t believe that we are already in October and so far this year I have only written 10 posts! So much for my plan to write 50 posts this year. Of course, looking back at my plans made last December, I can see that I have “failed” in nearly every single one of them. And yet, from where I’m standing right now, this does not feel like a failure to me as much as a change of perspective.

At the end of last year I still believed that the DWP were going to expect me to work towards getting back to work. And there was a big part of me that knew I would never be able to do that in the more typical way. I was too sick. So I was trying to find a way to make it possible. I was trying to figure out how to make this blog profitable, once and for all.

But the truth is, I am sick. I simply do not have the energy or health to invest in creating the kind of content and promotion and brand/client networking that is required to earn consistent money from self-employment. The only work I have done for anyone other than myself this year has been for the church, and that has been limited to creating one post for the Facebook page per week, promoting the service. And even that has felt impossible some weeks.

No, working isn’t something I am capable of right now. And thankfully the DWP agreed with me on that one (although how they then went on to refuse me disability benefits, I don’t know – surely, if you’re too sick to work, you’re classed as disabled, no?) Anyway, I digress.

This year has been a hard one. I have been more ill than I have ever been (well, aside from my pregnancy from hell, but at least that had an end point!) We’ve been in a major battle with the DWP, we’ve moved home because I could no longer cope with the stairs in our house, and I have spent a large part of the year completely debilitated by pain, nausea, migraines, and dysautonomia. And as such, I’ve had an awful lot of time where all I could do was lay in a darkened room, thinking about life, and trying to figure out who I am when I am not all the things I always thought I was. Including a blogger.

You see, over the years, as I have begun to use my media experience to work with clients, I started to forget that it’s perfectly okay to just blog for the sheer joy of blogging. I forgot that a post didn’t have to take 3 hours, when you calculated the time taken to write, research links, edit for SEO purposes, find a decent stock image, create promotional images for various social media platforms, and then share on said platforms. That’s what you do for a client, or for a business site. It’s not what you do for a hobby blog. Or, at least, it can be but it doesn’t have to be.

A couple of weeks ago I almost gave up blogging. Which is sheer and utter madness, as I’ve been blogging since 2006. It’s as much a part of me as anything else. The problem was, I’d forgotten how to blog just for me. I’d forgotten when it was like to write whatever was on my mind, regardless of whether it had any value to anyone else. I’ve never been very good at writing in a diary or journal, it makes my hands hurt for one thing as I can’t form the letters as quickly as I can type them, and I grip the pen too hard and it messes with my hypermobile joints. But more than that, I actually love the creativity of sitting down and crafting a post that, whilst not necessarily aimed at others could still be read by them. It helps me form a structure to my random thoughts, and that, in turn, helps me figure out things I might never have noticed if I didn’t blog.

Plus, blogging means that I have a permanent collection of thoughts and feelings to look back on. I might misplace a journal once full, but I can’t misplace a blog. My first blog is still lurking away on the good old internet. I looked back at it the other day. And my second one. And it was so wonderful to read my little rambling thoughts. To see how much has changed (and also, how much hasn’t!)

And suddenly I realised that this is what I wanted my blog to be. I wanted it to be a collection of memories. A place where I could just come and share whatever was on my mind. I didn’t want to worry about whether it would make sense to anyone, or whether I needed to include background information for something to make sense. I just wanted to write and share. And so that’s what I’ve decided to do.

I spent most of last week trying to come up with a new tagline which really encompassed this new theme for the blog. And then suddenly, out of the blue, it came to me. Life, as it happens… Because it’s nothing more than that. It’s life, as it happens. It’s not worrying about the future. It’s not worrying about where I fit in. It’s simply life. And life is a flow of new beginnings. Every day is a new beginning. And I want to focus on that. Taking each day as it comes. And writing about whatever happens to take my fancy.

But even though I’d come up with this idea, I still needed one last little push to actually do it. And that came in the form of a wonderful group of people who are all taking part in Get Your Happy Back (GYHB). I won’t write about GYHB in this post, as I want to end this soon. But just know that it is an amazing community that once you join becomes like your family for life. They meet 4 times per year to work on, as it says on the tin, getting your happy back. Because we all get beaten down by life, don’t we? And we all need the opportunity to come together and focus on ourselves regularly, right?

I know I do. In fact, I know I need to work on this a LOT. During the group call on Saturday, my microphone wouldn’t work, so I couldn’t join in to begin with. We all had a laugh about it, but it was very poignant for me. I have issues with expressing myself. You wouldn’t think that, would you, really? I mean, I’m a linguist and a writer – words are what I do. But as my dear friend, Rachel (who is an amazing therapist, by the way), mentioned to me today, there is a big difference between my ability to analyse what I think is going on and what I think people want to hear, and actually expressing what I need to express.

I’m so terrified of what lies beneath all the different personas, that I don’t even really know who I am anymore. And that’s scary. Because if I dig deep and I find out I’m not who I have portrayed myself to be for all these years, will people like the real me? Will I even like the real me? Scary stuff, huh?

Which is why she has challenged me to sit in front of a mirror and tell my story. From the very beginning (birth). In chapters. Because God knows I have a lot of layers to work through! And, to be quite honest with you, this blog post is a little bit of a delaying tactic, as I’m putting off getting started. But that means that this is really important, and so I’m going to be brave and I’m going to do it. I’ve got the house to myself until 5, when I have to go to an appointment to remove my Mirena (more on this at a later date – it’s a big, scary, but empowering change!)

So, changes are afoot. I am going to try to stop worrying about who I am and actually see if I can simply find her underneath all of these layers. I’m going to try and tell myself my story. And I’m going to use this blog to document what I call my “Sacred Healing Journey” over on instagram. Because this is life, as it happens…

Redefining Self-Worth - How I Found Freedom by Letting Go of Achievements and Valuing Who I Am

Redefining Self-Worth

I wanted to take a few moments today to reflect on the changes that have been happening in my life over the past few years. I don’t mean the external changes, although there have been plenty of those! I mean the internal changes that have helped me to look at my life from a whole new perspective, leading me to redefine my own sense of self-worth.

It feels almost impossible to know where to begin with this, because the way I view my life has changed in so many ways over the past few years. But I think the most logical place to start is in my teen years, when I first began to develop a warped sense of self-worth

Self-Worth from a High-Achiever’s Perspective

I’ve spent the vast majority of my life believing that my value came from the things I did, rather than simply who I am. As a naturally high-achiever at school, it seemed almost inevitable that this would happen. I got consistently good grades (often the highest in the class), and then I went on to study at one of the UK’s top universities. By the time I graduated, aged 22, my entire life had been about academic achievement. And yet, despite this, I never felt “good enough”.

Graduation Day University of Nottingham

It doesn’t make much sense, does it? I achieved so much as a teenager and in my early twenties, academically at least. You’d think that this would provide a solid foundation for confidence in my skills and abilities, but in reality the exact opposite was my experience.

I actually really struggled with self-worth a lot whilst at university, and when my dad asked me if I was finally proud of myself on my graduation day I honestly said that I wasn’t. I felt like I had completely bluffed my way through, and was a fraud.

And the thought of moving into employment terrified me, because I couldn’t ever see myself feeling confident enough to cope in the workplace. You see, for me, my self-worth had become so intrinsically linked with my achievements, I felt huge amounts of anxiety and fear over maintaining that high level of accomplishment. Anything less than “the best” felt like failure to me.

the ongoing impact of low self-worth

As a result, I did everything to avoid going into roles that might really challenge me. Don’t get me wrong, I loved my time working in childcare, retail, and student support. I’m a sociable person, and working in roles that involved meeting lots of people was lovely. But I never stayed anywhere long enough to advance up the career ladder. It didn’t matter that my employers could see my potential, giving me greater responsibility than my role actually required, I couldn’t see my worth.

And for most of my 20s I felt like I was just biding my time until I got married and had kids. The one thing I had always been sure about in my life was that I adored children and couldn’t wait to be a mother. I convinced myself that I wasn’t career driven or ambitious, I was just holding down a job until my real role in life would begin. So I was overjoyed when I fell pregnant in 2011, just a few months after our wedding. But my joy was short-lived.

Photo of pregnant mum and dad, back to back, with dad's belly sticking out like mum's bump

 

when life throws you a curveball, it’s easy to doubt yourself

As you may know, I suffered from Hyperemesis Gravidarum during my pregnancy. It was, quite honestly, sheer hell. I knew, without a doubt, that I couldn’t possibly face another pregnancy, because my first one almost broke me. But so did the decision never to have another child. I have never been so angry with God than I was during that time.

I remember crying through angry tears, asking why I had been made so maternally driven if I were only ever to be allowed one child. The one thing I had always felt so sure about, that I would devote years of my life to raising a young family, was suddenly snatched from me. And it broke my heart. I absolutely adored being a mother, it was everything I had ever dreamed of. But in my grief and confusion, my lack of self-worth started to seep into this area of my life too.

Any parent will tell you that having a baby is exhausting beyond belief. It feels relentless and scary, to be solely responsible for the welfare of this tiny being. And that’s before you even begin to look at other things that can make it even harder. We all have things we struggle with when we become parents. For me it was the combination of trying to recover from the trauma of my pregnancy whilst: caring for a baby who never slept; trying to deal with terrible issues with oversupply (which felt like my body was letting me down yet again); and supporting a husband who was beginning to suffer from depression. So, it’s not all that surprising that my thought process turned to beating myself up.

Mum and Baby cuddling

the destructive power of doubting yourself

I knew and trusted myself enough to know that I needed help to avoid spiralling out of control into a pit of despair, so I asked my doctor at my 6 week post-natal check for a referral for mental health support. I ended up having 7 months of CBT, and honestly I credit that with keeping my head above the water. But even with that, I still lacked the self-worth to follow my instincts and allow myself time to heal and process what had happened.

My inner chatter began to say things like, “why would you even believe you deserve to have more children when you’re already struggling with one?” and “what gives you the right to stay home and enjoy being with your child, when your husband is struggling so much at work?” I began to question everything, and whilst I look back on that first year with happy memories of sitting for hours just cherishing being home with my boy, I can see how I ended up taking the next steps that I did. Because I didn’t believe I deserved to enjoy being a stay-at-home-mum, nor did I feel like I was doing enough in my life. I felt like I needed to do more.

In a series of what I can now see were misguided, if well-intentioned, choices, I found myself pushed beyond my limit and close to a complete breakdown by the end of 2014. I returned to work when my son was just 15 months old, far sooner than I ever thought I would, and whilst I enjoyed the work immensely I also missed being with him more than I can say. At one point I ended up working two separate part-time jobs, and when one offered full-time hours I took it as it seemed easier than balancing two roles. But it was a role in which I felt incredibly isolated and which, due to the nature of the work tapping into my own personal trauma, almost broke me.

Screenshot of Amanda on Good Morning Britain

To any outside observer, 2014 should have been a high point in my career. My book was published and hit the top 10 for books in its genre on Amazon. I was interviewed live on national television. And I was working in a role that enabled me to support women all around the country. But I was falling apart inside in ways I had never, ever experienced before. And it was all because I hadn’t trusted myself enough to follow my instincts when they had repeatedly said, “this isn’t what you’re meant to be doing”.

sometimes the best lessons in life are the hardest to learn (because we resist them so much)

Near the end of 2014 I wrote a post called Warrior, because I felt like fighting was what I needed to do. But a few weeks later, in a moment of sheer desperation, I prayed to God in a way I’d never done before. I said, “I’ve tried everything, and I don’t know what I need to do any more. Please, you have to show me the way. It’s your turn now!” And I truly meant it.

I had spent so much time trying to figure out what I was supposed to do with my life, to give my life meaning, if I wasn’t meant to spend this part of my life raising babies. And I had found a purpose, no doubt about that. I had thrown myself wholeheartedly into campaigning for better awareness and care of Hyperemesis Gravidarum, so that one day no woman would have to make the same heart-wrenching choice never to have another baby as I had. But that wasn’t my purpose. That wasn’t what I was here for, and I was finally beginning to accept that.

But I was still very much caught up in the movement in a way that was deeply damaging for me, as well as for those I worked with. And I couldn’t see a way out. But, do you know what? Within moments of passing control over to God, I received the most overwhelming feeling of peace. It just washed right over me, and I heard the word, “Surrender“. And I knew that was what I was being asked to do. I wasn’t being asked to fight for (or against) anything, I simply had to surrender into it. And boy, did I surrender!

answered prayers often take us to places we could never have imagined

Within weeks of my prayer, I had been made redundant; been turned down at three separate interviews for being “over qualified”; and battled with a letting agency after our house move fell through unexpectedly. And yet, I felt nothing but quiet assurance that all would be well. I even began to think about trying to go it alone, finally finding the courage to look at my blog as a business opportunity, a chance to do what I was best at (communicate), rather than simply a hobby.

But in the end, I still didn’t trust myself enough to do that. I still felt as if that was something other people got to do, and it was silly of me to even contemplate the idea. Which is crazy, because it was around this time that one of my blog posts was chosen as one of the Blogger Keynotes at a blogging conference, and I got to read it in front of a room full of bloggers in June 2015. But still, I felt as if I wasn’t “good enough”.

Amanda with the founders of Britmums at Britmums Live 2015

So I eventually ended up in a part-time role, which I loved, but which was physically exhausting. My body had never really recovered from my pregnancy, all the symptoms connected to my EDS had increased, and my fatigue was at an all time high. I began to spend 3 days a week working, and the other 4 feeling like I had the flu. I could barely move, and began to get sick regularly on top. At the time I was gutted. I had thought I had finally said goodbye to the stress that had taken such a toll on my body.

But it was like my body was doing everything it could to make it impossible for me to continue ignoring the fact that I still wasn’t listening to my intuition. Every time I tried to find a purpose, things seemed to get immeasurably harder. I spent most of 2016 seeing multiple specialists to try and figure out what was wrong with me, and in the end I was given a diagnosis of Fibromyalgia.

life will keep sending you the same lesson until you get it

Even with this diagnosis, I still refused to stop and look at what I really needed to learn – self-worth. I left employment after 6 months on sick leave, but set myself up as a freelance VA and web support. I wouldn’t have dared dream of doing that until my sister-in-law asked me to do some work for her and suggested my skill-set was actually really valuable to other businesses. But with enough encouragement from her, along with two coaches I was lucky enough to work with (Pippa from Story of Mum, and Michelle Reeves), I took the plunge and set up Shortman Media.

My aim for the business was to build it up enough so that I could train Tim in the work I did, so that he could start working from home too. We knew his days in regular employment were numbered, and really wanted to avoid the UK Benefits System, which we knew was notoriously bad for supporting people like us. And for a while, it seemed as if this would work. During 2017 I managed to work with 6 different clients, and gained two amazing testimonials that boosted my confidence a bit.

But it wasn’t to last. By the end of 2017 I was working the absolute minimum hours (less than 10 per month), and even then I was struggling. And yet, despite knowing my health was in a rapid decline, I still had the most ridiculously ambitious plans for 2018.

when you “get it”, you really get it

I was still trying to “fix” my life, to find some purpose within the madness, so I didn’t have to face the fact that I needed help. So my body continued to send me messages I could not possibly ignore. I began suffering with migraines that lasted for 2 weeks every single month. I caught every virus going. I became practically housebound, barely leaving my house for the first quarter of 2018. I was literally reliant on others for pretty much everything.

And it was hard. Oh, boy, was it hard. I fought with feelings of guilt, and failure, as it just seemed to be one battle after another. The last 6 months of my life have felt like the darkest pit. And yet, once again, as I began to hit rock bottom I found my faith growing. I clung on to the hope that we would, one day, find our way out of this mess. And I began to realise that the only thing I could really do was focus on looking after myself.

Photo of Little Man smiling lovingly at me, as I rest in bed

I realised I couldn’t change what was happening to us externally, but I could change how I felt about it internally. I began trying to do things that eased my soul, and chose to trust that the Universe had my back. But it was hard. For instance, there were 3 weeks in which we were unable to bid on any council properties. This was then followed by several weeks when the only option were flats, which I knew without a doubt would be a terrible move for us.

There was one week when I really began to doubt myself and wonder if we should bid on a flat, just to get out of the house that had become almost prison-like to me. But I held faith, and lo and behold the very next week our dream bungalow became available. And even though it felt too risky to even dream we might get it, I just knew it was ours and felt like I was simply waiting for confirmation of what I already knew. And a week later, it really was ours!

letting go of the ego to find a true sense of self-worth

Of course, moving when you’re as ill as we are is far from easy. I had to swallow my pride over and over again, asking publicly for help with everything from decorating to doing tip runs. But do you know what I learned from this? I learned that people were more than happy to help, because they valued me for who I am, rather than what I could do. And it was a real revelation!

The more I asked, the more I received, and I began to see how truly blessed I am. In the moments when I felt like the biggest failure, I reached out for help instead of trying to hide my shame, and received so much support it was incredible. And it reminded me that, all along, I’ve been supported, I just didn’t want to believe it. Because I didn’t feel worthy. I felt like I hadn’t earned it.

But all that was changing. When I felt like I truly had nothing left to lose, I realised I had gained so much more than I could ever have imagined. And slowly, but surely, I began to redefine self-worth. I began to truly understand what it meant to honour yourself as worthy, just as you are. To “stop playing small” and fully embrace the beauty of who you are. I began to accept what I had written a few years ago, about us all being made to shine. And I began to trust myself again (or maybe, even, for the first time ever!)

when you trust yourself, you begin to find your way

This all brings me to the past few weeks, in which a huge amount of inner healing work has taken place. It all started with Rebecca Campbell’s new Work Your Light Oracle Deck, which I kept seeing on instagram.

I have several oracle decks already, and used to use them quite a lot. But in recent years I just haven’t felt connected to them at all. So it surprised me to be so attracted to this new deck, especially as the artwork was so different to what I would usually be drawn towards. After seeing it multiple times, and feeling a gut reaction to it every single time, I decided to trust my instinct and order it. And, wow, was that the best decision I have made in a very long time!

Work Your Light Oracle Cosmic Cross Spread

The deck itself is so incredibly beautiful, and the emphasis on the idea that You Are The Oracle really spoke to me. You can read about my first experience with the deck here, which in and of itself is incredible. I’d never shared anything quite so “New Age-y” so publicly before, and it felt really scary to open up that part of my life and express how much it means to me, especially as someone who also describes herself as a Progressive Christian.

Don’t get me wrong, I’ve touched on this in the past, but I’ve never authentically shared how it fits into my own personal life, nor how important it is to me. And that felt like a terrifying thing to do. But it also felt so right. As I wrote in my instagram post, “I’m finding the courage to share all the aspects of my faith and spirituality. Because I do connect with both “New Age Spirituality” and Progressive Christianity. I truly believe they complement each other and do not have to be an “either, or” option when it comes to faith. This is my path, and I don’t want to hide it any more.”

finding the worth in your own, unique story

Thankfully, several people liked and commented on my post, giving me the added reassurance that it was safe to share my story in this way. And it opened up so many doors for me. Because, for the first time ever, I began to see the worth in my story and the power in sharing it openly.

I’ve been blogging since 2006, and right from the beginning I wanted to write about faith and spirituality and how beautiful it can be when it is truly inclusive. But as a 22 year old, I felt like I had no right to be writing about such things – what did I know about life?

So I began writing about things that seemed “blog-worthy”, based on the types of topics other bloggers were writing about. Things like homemaking, crafts, and parenting. But the truth is, that wasn’t what I needed to write about. I needed to write about faith. And I needed to write about it in the context of life itself.

By that, I mean, I didn’t need to have it all figured out, I simply needed to write authentically as life happened. Because there is power in being open and raw and vulnerable, especially in a world that is so hell-bent on aiming for perfection. My beauty lies in the unfiltered parts of my life. And my worth is based on who I am, not who the world wants me to be.

changing “only” to “Amazing”

And so, I began to simply write what was on my mind, rather than worrying about whether it was share-worthy. And I began to trust that it would find those who needed to read it. Because a few weeks ago, in what I can only describe as an inspired moment of clarity, I suddenly realised I had been looking at my blogging journey all wrong.

For many years, I’ve felt like a failure for blogging for so many years and still only having a fraction of the reach that other bloggers have. I felt bad that I get “only” 2,000 visits to my blog per month, that “only” 147 people follow me on Facebook, and that “only” 660 people follow me on instagram. But in that moment of clarity, I changed my “only” to “amazing”.

I realised that it is truly amazing that my blog is viewed 2,000 times per month, despite me doing pretty much no social media promotion whatsoever. And it is beyond amazing that people not only follow me on Facebook and instagram, but they also encourage and connect with me whenever I post, despite my posts being irregular and likely to be lost in such a fast-paced environment.

just share your story, that’s all that matters

I couldn’t possibly reach as many as I do people without my blog or social media. So it is a true blessing to be able to share my story in this way. And I’m beginning to see the true value in sharing it, no matter how many people read it.

Funnily enough, the Universe was determined to help me remember this, as I suddenly came across a video series by Gabby Bernstein, in which she encourages you to simply get out there and share your story. In her first video she even mentions someone who arranged a public talk and only one person turned up. And yet, after her talk that one person thanked her for such an incredible experience. If we simply share our story, the rest falls into place.

And so that’s what I’m going to do. I’m going to share my story. I’m not going to worry about how long this post is, or whether it’s “of value” to anyone else. It’s of huge value to me, and reminds me that I’ve been sharing my story all along. It’s just, now I’m doing so with intention. Now I’m sharing it because I understand that it has value simply because it is true and authentic. And because of that, it is also healing.

This Is My Story. What is yours?

Picture of a woman smiling at the sky, with her arms stretched out behind her. The words Redefining Self-Worth - How I Found Freedom by Letting Go of Achievements and Valuing Who I Am are above her.

How Do You Know Your Worth?

How Do You Know Your Worth?

How do you know your worth? What is it, about yourself, that you feel makes you worthy? Is it the things you say or do? Maybe it’s your achievements and successes? What about your career? Or your relationships to others? What do you hold on to tightly, whenever you feel doubt begin to creep in?

For me, it is my goals and achievements. It is the things that I have done which I feel give me worth. Which is a problem for me right now, because at the moment I am too sick to do anything. I am barely getting by with the day-to-day tasks, doing the odd bit of work here and there and just about surviving, but certainly not achieving any real goals. And that is terrifying, because without those who am I?

a change in perception

You may remember that I shared 18 things I wanted to achieve this year recently. When I shared them with a close friend, I was reminded that these are ambitious goals for someone much healthier than I am right now. And it made me realise that I am struggling so hard with redefining my worth now that I am so sick…

And it’s not just the achievements that bother me, it’s the interactions with others and my perceived role in relationships that bothers me too. How can I be a good mother, daughter, sister, and friend if I’m too sick to do anything beyond the odd message here and there and a call out for help when I need it. What am I bringing to those relationships right now? Where is my worth?

Have you ever felt like that? Have you ever felt completely worthless, like you simply cannot do or be enough, just as you are? Have you ever carried feelings of guilt and fear over where you are and who you are becoming? Do you recognise what I’m trying to say?

If so, I hope that you’ll find the video below helpful. It is a poem I wrote on one of my darkest days recently, which also turned out to be one of the biggest turning points of my life so far. It starts with a feeling of helplessness, and ends with a message of love, which is exactly the journey I went on whilst writing it.

Image Credits: Matthew Henry, Louis BlytheAlex Boyd, Kaylah Otto, Mitchell Hollander, John Silliman, Greg Rakozy, Lee Scott, Sasha Freemind, Julia Caesar, Leon Biss.

Music Credit: Grass by Silent Partner

How did the poem make you feel? Can you relate to it? Did your mind fight the message at the end, not wanting you to believe how worthy you truly are just as you are? I’ve certainly been there and experienced that, which is why I love the powerful healing that I experience when I create something like this.

the healing power of creativity

For me, letting the creative juices flow enables me to get out of my own head and let the wisdom of the Universe speak through me. It inspires me, gives me hope, and reminds me that there is so much worth in the most simple of actions. By taking a moment to be quiet, allowing myself to be inspired, and then letting the poem work its way out into the world, I facilitated a shift in my whole perception.

Of course, as soon as I had done it I began to doubt myself again. I worried that the poem would make no sense to anyone else. Not that it would matter that much if it only made sense to me… except my experience whilst writing has always been that this is where my true worth lies, this is what I can bring to the world. So I wanted it to mean something to others.

So I swallowed my fears and shared it with a few close friends. And the response was more than I could ever have hoped for. Seeing others respond to my words not only increased my confidence in my writing, but also reminded me that we all hold these fears within us. I’m not alone in feeling this way, and so sharing my heart with you all is just as valuable as anything else.

I wanted to share it with you straight away, of course. But life had different plans, and I’ve been too sick to do it until now. But that’s okay because I’m learning patience as well as everything else. My worth is not in producing content constantly, rather it is in allowing an idea to flow and grow until it is ready to be shared, no matter how long that takes. There truly is worth in every step… even when that step might be resting in bed!

There's Worth in Every Step

 

Releasing The Old, Embracing The New

Releasing The Old, Embracing The New

You’ve probably noticed it’s been rather quiet here at The Patch lately, and there’s a reason for that. I’ve been really struggling health-wise, and in an attempt to keep going through everything that has been going on, I decided to focus on other areas such as Shortman Media and Spirit Kid Network. However I really, really missed writing here and so I am finally making the time and space to come back to this wonderful little blog of mine.

Last week we headed down to Glastonbury (my favourite place on earth) for an impromptu holiday, and for the first time in so very long, I knew what I needed to let go of in order to begin creating the life I want. The things I want have changed so much over the past few years, and it all started when I went from wanting to have a big family to trying to force my grief over my pregnancy (and loss of more children) into something positive. I poured all I had out into campaigning for others and trying to make the most of a situation I found so incredibly challenging, and in doing so I failed to recognise what I needed most – to embrace all the parts of who I am.

Years ago I wrote constantly. I’d scribble things on napkins in cafes as inspiration hit, I’d spend hours reading and writing about the things I found most exciting or intriguing, and my whole life revolved around communicating (I was a language student, after all). And for a while there I completely lost that side of myself. I got caught up in trying to “be a good blogger”, following advice from others rather than simply writing from the heart. And I did this because I felt I had lost who I was, and so I couldn’t identify myself without turning to other people’s interpretations of what it meant to write a blog.

And in my life as a whole the same thing happened, as I tried to figure out what it meant to be a mother, a successful employee (and then freelancer), a wife, a friend… I didn’t allow myself to be sick, even when I was sick, because I didn’t think that was what I was meant to be. I tried to keep up with people far healthier than I am, hoping to somehow redeem myself and my worth through being something other than who I am. And I never allowed myself to feel the grief and the pain and the anger over where I found myself, because I didn’t want to accept them as a part of who I am.

And all of that led to an intense loss of self, a situation where I forgot that as humans we are beautiful, multi-faceted beings, who sometimes fall so very low and need to stay in that darkness for a while before climbing back out into the light. By trying to lighten my situation constantly, I ignored a whole part of my soul, and ended up splitting myself in so many different directions I had no idea where my centre lay anymore. And the more I did this, the harder I fought to keep up the charade.

My time in Glastonbury changed that, however. I had some wonderful Soul Healing at the Goddess House, where a wonderful lady called Mandi Thorne explained how she could feel my resistance to let go. I have been clinging on to a false sense of control for so long that I am terrified of letting go and allowing all the emotions to bubble up to the surface. They scare me. And that needs to change.

So I’m taking tiny steps towards embracing the whole of who I am, rather than trying to be who I think I should be. And a large part of this involves closing down my other site (Spirit Kid Network) and bringing the spiritual resources I was trying to create over there to The Family Patch. When I set up SKN I did so because I didn’t think the resources fit here. And that was a mistake, because they are a huge part of who I am.

You only have to look at my posts over the past year to see I have written far more about my faith here at The Family Patch than I ever did over on my spiritual site. And that is because I pigeon-holed that site too, making myself believe that if it was about me and not a resource for kids it didn’t really belong there. I ended up losing my voice completely by splitting the parts of who I am so strictly.

So over the next couple of weeks I’m going to be rebranding The Family Patch to reflect this new integration of all that I am. No longer will I worry about whether it’s a craft blog or a health blog or a spiritual blog or whatever else I think it should be in order to fit in. It is a beautiful, complex, and disorganised place where I can share my heart as I journey towards better health and healing through honouring all that I am. And I am so delighted to be moving in this direction.

12th May International Awareness Day Fibormyalgia and ME/CFS

ME/CFS & Fibromyalgia Awareness Day 2017

Today is quite a poignant one for me. Just a few days ago I found out that the Rheumatologist had diagnosed me with Fibromyalgia/CFS, after many months of tests and appointments with a wide variety of specialists to try and figure out why I am so ill. So when I discovered that 12th May is an Awareness Day for both of these conditions, I knew I had to come on here and write a post about it.

Since 1992, 12th May has been designated as “International Awareness Day for Chronic Immunological and Neurological Diseases (CIND)“, which includes Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), and Fibromyalgia (FM). This means that 12th May 2017 is actually the 25th Anniversary of this Awareness Day, and I have to say that I’m grateful for that, because it means that my diagnosis this year comes with a lot more understanding than the diagnosis my mum received 20 years ago.

You see, the diagnosis may be new to me, but I grew up knowing just enough about ME/CFS to have an appreciation of the impact it can have on the lives of those who suffer from it, and their families. I remember my mum, who was a childminder at the time of her diagnosis, giving up work as it was just too much. I also remember accompanying my dad on the weekly grocery shop to save my mum having to deal with the supermarket for a while. And in the years since, I have watched as more and more health issues have complicated her life.

And yet, despite seeing a close member of my family dealing with ME, and managing other chronic illnesses of my own (namely Hypermobility and Endometriosis), it wasn’t until I began to suffer from the exact same symptoms myself that I truly realised just how debilitating these conditions can be. It’s hard to describe just what it feels like, and my understanding is that it is slightly different for everybody, but I want to try and share a little bit about what it feels like to me and the impact it has had on my life already.

12th May International Awareness Day Fibormyalgia and ME/CFS

my symptoms

It’s been quite challenging for me to pinpoint the symptoms, not because they aren’t severe but because they are similar to symptoms I have experienced in the past due to other conditions. However, the following have all become much worse than they have ever been, or are completely new to me, and it is these which I find the most distressing and debilitating:

Extreme fatigue and exhaustion – since developing this symptom I am aware that I completely underestimated exactly how bad it was for people with ME/CFS (sorry mum!) This goes far beyond the feeling of exhaustion you associate with having overexerted yourself or the fatigue that comes from lack of sleep. This is an overwhelming and all-encompassing lethargy that fills your entire body.

When it hits me (and it often hits me without warning!) I find myself completely reliant on those around me to pick up the pieces and allow me to drop in bed. Even sitting in bed feels like it takes too much effort, and it is so difficult to concentrate I find it hard to read or watch TV or even communicate some days. And let’s not talk about the days I skip lunch because I simply haven’t got the energy to make myself something to eat (yes, it really can be that bad!)

Brain fog – following on from the extreme fatigue, sometimes I simply cannot clear my head, and the simplest things escape me. I forget to take my medication, and then wonder why I am in pain or my stomach is so upset. The only thing I can liken it to is the effect of severe sleep deprivation during the early days of parenthood, when you’re so exhausted that everything seems to take so much more concentration to make sure you do it right.

You could ask me a question and I might not answer for several minutes, because it takes that long for me to process what you’ve asked and then formulate an answer. And there’s absolutely no point in asking me to make a decision on days when the brain fog hits, just don’t even try.

Joint and muscle pain – this has been quite a tough one for me to connect to the Fibromyalgia/CFS to be honest, because I simply assumed the increased pain was due to my Hypermobility. But I recently realised that it goes beyond that. Sure, my hips kept trying to pop out for a while, but several months with the physio helped to relieve that a lot. But despite increased core strength exercises, I still suffer from daily pain in my hips, pelvis, knees, ankles, back, neck… not usually all at once, but sometimes it happens.

Today is particularly bad – my ribs feel bruised; my pelvis is sore; my knees, ankles, wrists, and elbows all ache; and my forearms hurt where they are resting on the edge of the table as I type… just a small amount of pressure which would never have bothered me in the past.

Migraines, dizziness, and vertigo – again, these are things I have experienced in the past at one time or another, but this past year they have increased in both severity and frequency. Just before Christmas last year I had a six day migraine, and in recent months I have discovered that I sometimes have all the symptoms of a migraine (sensitivity to stimuli like light and sound, an out-of-body-feeling, etc) without the pounding headache, which I have never experienced before and which is very disconcerting!

Some nights I cannot lay down in bed, despite being exhausted, because I’m just too dizzy. Other times, it comes on when I am looking at a computer monitor, mobile phone screen, or even after eating my evening meal. When it happens I simply have no option but to rest in a darkened room as soon as possible until it passes, which can sometimes be several hours.

Nausea – okay, so this one I have suffered from to varying degrees for years due to both IBS and Endometriosis. But never before have I suffered from nausea so frequently, just because I am tired or in pain. In fact it took me quite some time to make the connection between my pain and the nausea, and it was only because I happened to take some painkillers one day and realised my nausea practically disappeared as soon as the paracetamol kicked in. I often underestimate the effect that the pain has on me, and this really taught me just how much my body is struggling to deal with everything right now.

Inability to regulate temperature – one of the first signs I had that something was really wrong, was the fact that I would wear 6 layers to work (a long sleeved thermal vest, a second vest, a t-shirt, 2 cardigans, and a fleece jacket) and I would still  be so cold I was physically in pain! Then, when the summer came around I could barely cope with the heat – whilst everyone else was sweating through the heatwave, my body didn’t seem to be doing anything to cool me down, and I relied heavily on the fan to keep me as comfortable as possible.

the impact this has on my life

Anxiety – this is a huge one for me, because the unpredictability of my illness means that I find myself getting anxious over things which would previously have excited me. For instance, I had a major panic attack last summer, because Little Man and I were due to go to London for the Cosmic Kids Fan Event at YouTube. I lay in bed, heart racing, cold sweat pouring off me, as I thought about getting us both down to London, across the city using the Tube, and to where we needed to be on time. I have travelled so much over the years with public transport and it has never made me panic like that before, but a part of me was suddenly aware of how much I was struggling and how I couldn’t guarantee I would be well enough to cope with such a busy day, and that terrified me. We managed it in the end and had a great day, but it took so much out of me.

That same panic hits me regularly as I realise this same unpredictability of my illness (and the severity of debility when it is at its worse) is preventing me from working and providing stability for my family. It’s very difficult to talk yourself out of panic when you realise your anxiety has some logic to it.

Unemployment (and financial instability) – again, this one is huge. My part-time employment ended in January this year, after 6 months of continuous sick leave. At that point Fibromyalgia and CFS had both been mentioned but I hadn’t been officially diagnosed. Even so, it was clear I wouldn’t be well enough to continue working in my previous employment.

I had hoped to make things work as a freelance online media specialist, but unfortunately even a few hours a week has been proving too difficult to manage. I still do very ad hoc work for a couple of clients, but this is 2-3 hours per week total, and nowhere near enough to provide for my family. Just this week I have had to make multiple claims for increased financial support, and there is nothing worse than feeling that a) you cannot provide for yourself and b) even when you try claiming support, you’re not even eligible for half of it anyway. Needless to say, this is a huge impact my illness has on both me and my family.

Reduced activity with the family and friends – this last one tears me apart. When we first moved to our current home, I did lots of different things with Little Man around the city over the summer holidays. Last year the summer holidays were spent mostly with me resting in bed and him watching YouTube on his tab next to me. This year I expect it will be very similar – I simply do not have the energy to do things with him, and that breaks my heart.

Equally, I find I cannot plan days out with friends or even a catch up over coffee, as I am just too ill to manage it. Last week I had to cancel meeting two friends for coffee due to a stomach bug, and the resulting time required to recover from that meant I had to cancel a lunch trip with my Grandma and others from church this week too. Just a couple of months ago I also had to cancel singing in the choir for the church panto, as I was simply too sick to cope with multiple performances.

Most nights you can find me resting in bed, watching Netflix or reading a book, because I simply do not have the energy to stay up any longer… I go to bed before my 5 year old! And as much as he likes simply being with me, sometimes even trying to keep up with his conversation is hard work when I am so tired.


but my story is just one of many…

As you can see, Fibromyalgia/CFS has had a massive impact on my life, and affects my family too. And my story is far from alone. I have been truly blessed over the past year to have found a wonderfully supportive community over on instagram, with people dealing with a wide variety of chronic health conditions, including ME/CFS and Fibromyalgia. I wish I could list them all on here for you, but that really would be a mammoth task… instead I am going to list just a few to help get you started, if you’re interested in learning more.

alulabelle3

amber.and.m.e

chronicallyhetty

I.and.M.E

imnotchris

jollyjilly58

just.keep.swimming.along

mookpixie

mummyneversleeps (whose husband is a sufferer)

ozjapottish

pinkjerbera

racheyg123

yoga_mybed_and_m.e.

If you search using hashtags such as #may12, #mecfs, #myalgicencephalitis, #chronicfatigue, #fibromyalgia, #spoonie, and #butyoudontlooksick, you will find so many more accounts to follow!

You can also find more information about these two conditions at the following places:

ME Association

Fibromyalgia Action UK

 

Prayer Candles

Embracing Uncertainty, Grief, and Vulnerability

I was unsure what to call this post, because there are so many things that are heavy on my heart right now. But I think the title I’ve chosen sums it up rather well. For such a long time I have been desperately fighting the uncertainty over my future, the grief I feel over things beyond my grasp, and the vulnerability that comes with accepting that I am sick and that I can no longer give until I first learn to receive. Resisting all of that has taken its toll, and it’s time I learned to embrace it instead.

I hasten to add that this isn’t a new concept to me – I’ve known I’ve needed to do this for years, but knowing something and actually accepting it are two very different things. Even as my health has deteriorated over the past few years, I have refused to acknowledge just how ill I have become, because doing so felt like giving up. Even up until the very beginning of this year, I was determined to make it all work somehow – I’d go freelance and work from home, I’d schedule in time each day to focus on my well-being, I’d cook healthy meals from scratch, and I’d find a way to do all of this and continue to run two blogs, be active in social media groups, and get more involved in my local community too.

How hard could it really be? I thought. After all, I wasn’t quite as sick as I had been when first signed off work last summer. Several months of trying to rest as much as possible had made a difference, but I needed to get going again to help make ends meet financially, and I didn’t want to be held back by my illness anyway. Unfortunately, with all the determination in the world, there are some things you just cannot change. For me, this is my health. I’m not talking about small changes like eating healthier and getting exercise – of course those make a difference. What I mean is that, if you are chronically ill, sometimes you just have to accept your limitations and find a way to work within them. But that it something I am terrible at!

The past 3 months have practically broken me: I’ve been working with several clients on some pretty big projects; I’ve seen my family struggle with my Nan’s final weeks on this earth; I’ve had multiple conversations with Little Man’s teachers as he has been struggling to settle into the school environment; and I have tried to keep my home running as smoothly as possible throughout all this change, all whilst suffering from multiple viruses on top of my general ill health. And yet despite all of that happening, I still continued to try and do more…

When I look at it like this, I realise how unbalanced my thinking really is. And I understand why I live with this constant knot of anxiety at the pit of my stomach, never knowing when a full-blown panic attack may occur.  Because I haven’t given myself time to breathe, time to sit in the uncertainty of my life and grieve for all that I had once wished for but which can no longer be. And I certainly haven’t allowed myself to be vulnerable, because that fills me with absolute dread – what happens if I do that and it all falls apart?

So, of course, life enabled me to experience that which I feared the most, didn’t it? This week I was faced with “saying no and letting go” to so many things, things that I not only felt I ought to do but which I really wanted to do too. I had filled my week with fun activities – a trip to the Cathedral with a friend, and singing in the choir for the Church Panto. But a stomach bug stopped me in my tracks and made me realise I simply cannot do it anymore, I cannot continue to pretend I am coping when really I’m so close to breaking.

Prayer Candles

I toddled off to the Cathedral with my friend, feeling worse for wear but determined to make it through the week, and ended up spending half of the time in the toilets! I then sat quietly in a little chapel, knowing that I had to cancel my plans but so terrified of letting people down. Thankfully my friend was a wonderful comfort that day, encouraging me to allow myself to be vulnerable for once and not worry so much about other people, and I cancelled attending Bible Study that afternoon and Panto Rehearsal/Performances for the rest of the week. I cried so much when doing it, partly because I hated to let others down, but mostly because of what this signified. In cancelling these plans I was truly beginning to acknowledge how ill I truly am right now.

Which led me to thinking about all the areas in my life that drain the energy I simply do not have to spare. Many of them are things I love and am so passionate about, and it breaks my heart completely to have to put them aside right now. But the alternative is continuing until I break, and having been there just a year ago (and again a couple of years before that) I am desperate not to return to that place any more. This time I want to truly embrace the uncertainty of it all, to grieve for all the things I wish were different, and to allow myself to be vulnerable in this space. No more “putting on a brave face” and pretending all is well when it’s not. Wow, that is hard for me to write… and even harder to live!

Which brings me to the point of this blog post, really. I’ve had a good, long (and extremely hard) look at all the things that I have going on in my life and decided that I have to cut back on so much in order to give myself the time, space, and energy to truly begin this healing work. And here’s what I’ve decided:

1. I shall make time every single day to seek out the love of God which I know is helping me through all of this. This will take various forms – sometimes it may be reading a book, sometimes it may be walking in the park, and sometimes it may be sitting in silence.  Whatever form it takes, I want it to become a prominent part of my day, helping me to truly embrace the uncertainty of it all, trusting that I don’t have to have it all figured out!

2. Leading on from this, I shall use The Family Patch as my place to simply write what feels important to me, rather than trying to produce “useful” content. And right now that is likely to be a lot about faith. I know that this isn’t everyone’s cup of tea, so please do feel free to unsubscribe or mute updates from me if you don’t want to read this kind of content. But for those of you who are interested, please do share with me your own thoughts and experiences in the comments, as I’d love to hear from you.

3. Even though it is faith-based, I am taking a break from Spirit Kid Network. I simply cannot devote the time needed right now to build up the kind of content it deserves. There is still content to be found over there from last year, plus my free chakra guide for kids, so I’m not shutting it down completely. I simply need to release the pressure of producing new content on a regular basis on both of my blogs.

4. I am also going to limit my use of social media, particularly Facebook Groups. To be fair I haven’t been using Twitter, Instagram, or Pinterest that much lately anyway. But a large chunk of my time gets caught up in Facebook Groups. Most of these are relevant to the work I do at Shortman Media, so it feels a bit risky to step back from some of them, but I really do need to limit my time spent helping others – every short answer I give soon adds up over the length of a week.

The Faith Space

5. That being said, I do want to spend a bit more time in The Faith Space, which is a Facebook Group I set up for those of us who wanted to discuss faith in an open and religiously diverse way. I’m not promising anything in terms of how much I’ll actually do on there, but if you’d like to join us please do request to join the group over on Facebook.

All of this means that the limited time and energy I have outside of what I have to do (freelance work, housework, family life etc) is less likely to be eaten up by multiple different things and more likely to contribute to my overall well-being, by focusing on what is most important to me right now. I am a giver by nature – I want to be there for everyone, encouraging and supporting them, no matter what. But that takes a lot of time and effort, which I simply do not have right now.

So, that’s where I am right now – embracing uncertainty (and trusting in God’s plan for me), grief for all the things I have to let go of right now (including all those big, exciting plans I have), and vulnerability (so that others can offer love and support where I cannot). It’s an emotional place to be, and I have cried more over the past few days than I have in months, maybe even years. But that’s all part of the journey, isn’t it?